Mental Health Coming off Invega Sustenna (paliperidone)

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Haha! Reading some of these posts, I feel like I got the ass end of fuck all: an injection every month for nearly a year. My full recovery will probably start by the time I enroll myself in a community college. But I'm in no rush. It's been quite a journey and if I can't at least be glad that I'm not contemplating suicide every other night, I guess I don't deserve the life I live.

But y'all seem pretty optimistic from what I've read. So I guess that's one thing this thread gave: hope. When I first started lurking on this forum - before I made an account - the general sense, it seemed, was that the effects of this drug stayed with you until death!

Glad we're past that.
 
18 weeks, 126 days off the poison tomorrow, the chills have gone and the depression seems to be coming and going, definatley nowhere near as bad as at the 3 month stage, not had a drink for a week and am able to chill out at night without it, the anxiety seems to be going aswell, just waiting for the 150 day mark which will mean I should have only an eighth of the poison in me.
I actually feel like I'm living in the moment which is not how I've felt since being poisoned by invega and other AP's over 4 months ago. I think its a confidence thing aswell, having no dopamine or limited affects your confidence and makes you depressed I think. Just got to keep plodding on I suppose, its like an addict going through withdrawals, each day is a step closer to recovery.
 
Thanks for your help, It's sad that your son had become involved again with weed, that's bad.
That weed with CBD compounds seems promising, but I still have fear about taking it, it could make me go crazy again, are you son taking it? is it working ? making him feel better?
Well I should say that Zyprexa helped me a lot, and I didn't even had any withdrawal symptoms, I also just took the pills for about 2 months maximum.
About the supplements you suggested, I had before talked with my psychiatrist about taking 5-htp to start feeling better, and she said I cannot take those kinds of pills.
You say that: "So I would encourage you to wean yourself off of the anti-psychotic meds as quickly as possible" , you mean I should drop Invega by myself? I want to, but I have fear of having another episode even though I won't smoke again, do you think its possible?
Thanks for your help
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Mr. T, I’m glad to hear what you’re experiencing with Zyprexa. My son wants to try that again to see if it makes him feel any better. I keep thinking he has some good days or good times, but he tells me no. He says that he may sound normal, but he still feels terrible. He keeps talking about how his life is so useless and pointless. He’s worried about what would happen to him when we, his parents, are gone. He kept saying that he will be dirt poor because he can’t make it in school, and he can’t seem to handle working. I keep telling him it’s the Invega making him feel that way.

My son’s psychiatrist also told us that he shouldn’t take 5-htp. All I know is when he did that and the other supplements, he got better. So far, nothing the psychiatrist prescribed has helped. In the last 2 weeks, he’s tried Fluoxetine HCL (Prozac - 2 different strengths), Trazodone, and BuPropion HCL SR (Wellbutrin). Nothing helps, Prozac made it worse, and the last one just made him feel “weird”.

The Cannabidiol (CBD oil) that I’m giving my son has almost no THC in it. (maybe 0.1%. It seems to be helping him tremendously. His psychosis is of course gone. But his entire personality has changed too. He changed dramatically for the better in a very short time. He used to be angry all the time, rude, demanding, unappreciative, and even threatening. There were times that I was afraid to be around him. All of that is changing. He seems to have a much better understanding of how to deal with people. He talks to me like he never has before. He hugs me and tells me that he loves me. He appreciates all the things I’m doing for him. If we go somewhere, he opens doors for me. He even told me that his father is a really nice guy. He’s never said that before – that I can remember. This was all happening before he got the Invega.

The scientific experiments using CBD oil to treat Schizophrenia do not have THC, or very minimal amounts of it. The patients do just as well with the CBD oil treatment as they do with standard Anti-psychotics (APs), but without the side effects. Please do some google searches on CBD oil treatments for psychosis. There’s lots of information on it.

I’m taking the CBD oil too. It helps with sleeplessness, my peripheral neuropathy, joint pain, and other things. It comes mainly from industrial hemp, which you could smoke all day if you wanted to, and it wouldn’t get you high. Industrial hemp is mainly used for rope, fabric, and a hundred other things. CBD oil is legal in the U.S. to buy. I would get a concentrated form. Also, do your best to get the proper nutritional supplements.

Pharmaceutical companies have created a drug from Cannabis to treat nausea from chemotherapy, but it probably has THC in it because one of the potential side effects is ‘feeling high’. You don’t want that.

I wouldn’t suggest going off any APs without having some committed person around to help you. All those drugs are very hard to get off of on your own. If you know someone who knows about alternative healthcare (ideally Orthomolecular Psychiatry), that would be a great help.

If you are anything like my son, your internal endo-cannabinoid system, which is supposed to protect you from psychosis, was insufficient due to being overwhelmed by a combination of things – smoking weed, lots of stress, lack of sleep, poor nutrition, forgetting supplements, and neurotoxins (THC, caffeine, sugar, nicotine, alcohol).

I’m convinced that no one would have mental health issues if they took proper care of themselves. But I’m definitely in the minority.

If I win the next $1 billion dollar lotto, I will open a state-of-the-art mental health clinic, using only health giving substances to help people get better. No poisonous pharmaceutical drugs allowed.
 
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Every day is such a hell for me. I am almost sure that I ll never recover. i have panic attacks such a depression with whining attacks nothing changed. i am scared to hell that i feel like this forever.... it got in the muscle... and vaccinations stay in your system forever they are given in the muscle too. :(

I have been off invega sustenna for 9 months now ..no change...:(((((((....
 
I apologize for the sloppiness of the etiquette of this post, but your post, Hilary, reminded me of a diagram a friend of mine once posted on Facebook back when he was still a frequent "facebooker". The diagram can be found three quarters of the way down this page: http://cannabest.org/category/cannabis-education/

Again, sorry. I would have otherwise posted the diagram directly, but I no longer have a photobucket account and have no desire to recreate one.
 
RESULT low testerone, got some testo cream to apply each day for the next few months. Not only does it effect your sex drive, but it causes depression, concentration and motivation problems, at last some positive news and hopefully I'll be fully recovered from the poison in a couple of months.

I might have a joint to celebrate
 
Every day is such a hell for me. I am almost sure that I ll never recover. i have panic attacks such a depression with whining attacks nothing changed. i am scared to hell that i feel like this forever.... it got in the muscle... and vaccinations stay in your system forever they are given in the muscle too. :(

I have been off invega sustenna for 9 months now ..no change...:(((((((....
Like I said before, you're probably experiencing withdrawals from stopping the Invega Sustenna. You can either wait for the withdrawals to pass (anywhere between 1 month to 6 months from when they started) or you can get yourself back onto an anti-psychotic to curb them.

You can always ask your doctor to ween you off of the meds after you get back to "baseline".

Don't fuck around with paliperidone and risperidone withdrawal. These drugs create a serious sort of dependency.
 
Playing the waiting game is certainly a part of recovery, but it's not the only thing, as I suggested earlier.

There are ways to accelerate recovery, including exercise, therapy, a good diet, and more. I'd suggest asking your physician/doctor about it. The longer you live in that hellish place, the more likely that you'll resort to unhealthy coping mechanisms (basically, drugs).

I think it's also important to keep in mind that though it may have been overkill to get on a large dosage of the shot, perhaps a smaller dose should by discussed with your doctor and trialed.
 
Hi all, new to this forum but i have read all through this thread.

A little background about myself: I have had 2 psychotic episodes. last one was in september of 2014. was given my first injection of invega sustenna in october 2014 and my last injection was aprox. sept 20th 2015 (11 months) and i am now on 10mg of abilify.
I gained 17 lbs with invega and the biggest problem I experienced was sexual dysfunction. no semen would discharge upon orgasm (very weak orgasm) and i had very little sex drive.

its been 4 months aprox since my last injection and i have lost 15 lbs with diet exercise and 2 bottles of hydroxycut
*** this part may be too much information***
My sex drive has improved a lot but it's now a 50/50 chance whether semen comes out and when it does (the first time) its watery and very little comes out. when i try a second time much more semen comes out but its very viscous and yellowish color. Apologies if that was too graphic

I am wondering if abilify has any effect on sexual function in the same way that invega does, does anyone know?

I will post updates as time goes on.

thanks all and kind regards!
 
I apologize for the sloppiness of the etiquette of this post, but your post, Hilary, reminded me of a diagram a friend of mine once posted on Facebook back when he was still a frequent "facebooker". The diagram can be found three quarters of the way down this page: http://cannabest.org/category/cannabis-education/

Again, sorry. I would have otherwise posted the diagram directly, but I no longer have a photobucket account and have no desire to recreate one.

No apology needed. The link is good.

We went to the hospital to get a print out of his records from his stay in the hospital. They falsified some of the information in the documents. They say that they had an extended conversation with my husband about doing the injection of Invega Sustenna. I asked my husband about that. He said "No way did I say that. They didn't discuss medication with me at all. In fact, they said that he was doing really well. Why would I agree to a long-acting shot?".

The truth is, I contacted them by phone, and told them that he had a really bad experience with Risperdal 6 years ago. He was so miserable that every morning I was afraid of finding him dead in his room. I said that I was really concerned about Invega, because it's in the same family of drugs as Risperdal. But by that time it was too late, they had already given him the shot - 234 mg in the deltoid, and they were committed to giving him a second shot within a few more days. Nothing I said sunk in. I called the nurses station 7 times in 3 days. There were no comments about any of that in his records. I think he would have killed himself if he had gotten the 2nd shot.
 
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Hi all, new to this forum but i have read all through this thread.

A little background about myself: I have had 2 psychotic episodes. last one was in september of 2014. was given my first injection of invega sustenna in october 2014 and my last injection was aprox. sept 20th 2015 (11 months) and i am now on 10mg of abilify.
I gained 17 lbs with invega and the biggest problem I experienced was sexual dysfunction. no semen would discharge upon orgasm (very weak orgasm) and i had very little sex drive.

its been 4 months aprox since my last injection and i have lost 15 lbs with diet exercise and 2 bottles of hydroxycut
*** this part may be too much information***
My sex drive has improved a lot but it's now a 50/50 chance whether semen comes out and when it does (the first time) its watery and very little comes out. when i try a second time much more semen comes out but its very viscous and yellowish color. Apologies if that was too graphic

I am wondering if abilify has any effect on sexual function in the same way that invega does, does anyone know?

I will post updates as time goes on.

thanks all and kind regards!

Drug side effects varies from person to person,such drugs destroys orgasm quality.Abilify is a kind of antypsychotics but it has a property from other antypsychotics,It's agonists dopamine and it's a good for your libido.

Antypsychotics block dopamine receptors and it cause prolaktin incrase.It's bad for reproductive system.High prolactin may lowers testosterone.

Than I have no idea for semen maybe it's side effects of invega or abilify.I suggest seeing to urologist.
 
They falsified some of the information in the documents. They say that they had an extended conversation with my husband about doing the injection of Invega Sustenna. I asked my husband about that. He said "No way did I say that. They didn't discuss medication with me at all. In fact, they said that he was doing really well. Why would I agree to a long-acting shot?".

The truth is, I contacted them by phone, and told them that he had a really bad experience with Risperdal 6 years ago. He was so miserable that every morning I was afraid of finding him dead in his room. I said that I was really concerned about Invega, because it's in the same family of drugs as Risperdal. But by that time it was too late, they had already given him the shot - 234 mg in the deltoid, and they were committed to giving him a second shot within a few more days. Nothing I said sunk in. I called the nurses station 7 times in 3 days. There were no comments about any of that in his records. I think he would have killed himself if he had gotten the 2nd shot.
From what I gather, falsifying of documents in these hospitalization situations happens far too often. Hell, just 30 years ago, a mental hospital in my area was force-feeding cigarettes to patients and strapping them to chairs - beating them. Or at least that's one persons account whom I spoke with.

But yes, in my case, in that very same hospital, I was psycho-analyzed shortly after I was admitted. I was asked the question: "Do you hear voices?" And I answered, "No." He said, "Sooooo... 'Yes'?" And I said more bluntly... "No!"

He wrote down, 'yes' to that question.

My psychiatrist was blown away when she mentioned I hear voices and I told her that's not true. "I wonder why they would have said that," she says.
 
Keep taking different tablets is going to upset your sons CNS Hilary and make the suffering from the poison even worse. He needs to accept that for the next couple of months he's going to feel ill and he has to get through it. It gets better after the first month, but month 2 and 3 are brutal aswell. I used procycledine for the first 3 months, but also tried propanadol and diazepam because it's like being tortured 24/7. He really needs to get his head round and understand the full power of the poison, what it's doing to his body and brain and have faith that eventually he will feel better. Olazapine is just going to make him feel worse and block even more receptors imo and the withdrawal and further upset to the CNS is not going to be good.
There's no point being bitter with the doctors, they are just brainwashed by the DSM and big pharma, in years to come AP's will not be used at all and people won't have to suffer as they do now. Is the CBD oil not working anymore ?
 
Keep taking different tablets is going to upset your sons CNS Hilary and make the suffering from the poison even worse. He needs to accept that for the next couple of months he's going to feel ill and he has to get through it. It gets better after the first month, but month 2 and 3 are brutal aswell. I used procycledine for the first 3 months, but also tried propanadol and diazepam because it's like being tortured 24/7. He really needs to get his head round and understand the full power of the poison, what it's doing to his body and brain and have faith that eventually he will feel better. Olazapine is just going to make him feel worse and block even more receptors imo and the withdrawal and further upset to the CNS is not going to be good.
… Is the CBD oil not working anymore ?


You’re right, Bad Robot. I tried to tell him the same thing. But he’s desperate, grasping at straws, hoping that something will make him feel better. He’s becoming more convinced that some drug is the answer. He’s seeing a psychologist (for the anger issues) and a psychiatrist. They’re both pro drugs. He told me that maybe he needs to be on some medication. He didn’t take any supplements yesterday morning, and I think he’s not taking the CBD oil either. I can’t force him. All I can do is keep talking.

I don’t know what’s going on with the anger issues... Maybe it’s a learned behavior for dealing with stress. Maybe it’s a nutritional deficiency that we’re not addressing. Another possibility is caffeine allergy. In a quote from DoctorYourself.com:

…”Caffeine toxicity is known to cause excitement, agitation, restlessness, shifting states of consciousness, and toxic psychosis (10), mimicking amphetamine psychosis. Allergic individuals may be erroneously diagnosed, medicated, and lost in a dark disturbed world, until death.
Caffeine toxicity may be mistaken for bipolar disorder (1,12). Symptoms include: chattiness, repetitive thought and action (resembling obsessive compulsive disorder, OCD), restlessness, psychomotor agitation, alternating moods, anger, impulsiveness, aggression, omnipotence, delirium, buying sprees, lack of sexual inhibition, and loss of values.
Allergy can mimic Attention Deficit Disorder (ADD) (13). As far back as 1902, T. D. Crothers noted that many caffeine consuming children "exhibit precocity" and "functional exaltation" (14)”….

I’ve also heard of cases were some people with serious personality issues are chronically low on Niacin (B3). Even regular supplements may not be enough. I might try to give him extra niacin to see if that helps.

Thinking back, when he was at a different hospital in November, they gave him Zyprexa. He seemed to like that stuff. But it also seemed to also make him hyper, and moody.
There's no point being bitter with the doctors, they are just brainwashed by the DSM and big pharma, in years to come AP's will not be used at all and people won't have to suffer as they do now.

Right there too. A generation ago, he would have been a candidate for a frontal lobotomy. Either things will get better or pharmaceautical companies will get better at trickery. If we lose our freedom to communicate electronically, we lose too.

I keep saying drugs are not the answer – they are the problem.
 
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From what I gather, falsifying of documents in these hospitalization situations happens far too often. Hell, just 30 years ago, a mental hospital in my area was force-feeding cigarettes to patients and strapping them to chairs - beating them. Or at least that's one persons account whom I spoke with.

But yes, in my case, in that very same hospital, I was psycho-analyzed shortly after I was admitted. I was asked the question: "Do you hear voices?" And I answered, "No." He said, "Sooooo... 'Yes'?" And I said more bluntly... "No!"

He wrote down, 'yes' to that question.

My psychiatrist was blown away when she mentioned I hear voices and I told her that's not true. "I wonder why they would have said that," she says.

It’s evidently what hospitals do in order to maintain control and cover their butts.

I was at a ‘commitment hearing’ at the first hospital that my son was taken to. The judge asked me if I had relinquished the right to be informed about my son’s medications. I told him that no one ever asked me that question. He said that was “interesting”. One of the hospital employees asked why he asked that question. The judge replied that in every hearing that he’s attended, he’s been told that the parents of the patients always say they don’t care or don’t want to know about medications. He said this was the first time that he’s had an opportunity to ask the parents.

Apparently parents don’t go to the commitment hearings. Sad, but true.
 
Your posts about your son remind me somewhat of myself. I can understand your concern for figuring this situation out; recalling being on celexa (I believe; I could be wrong), I was extremely angry all the time. But I didn't figure out what it was until after giving my parents quite a few gray hairs, so to speak. In other words, getting to the root of what's causing these issues can be tricky. I know that doesn't help solve your problem, but you're smart and I'm sure you'll figure this out, Hilary.

After my psychotic break that triggered my schizophrenia, I was extremely difficult to be around, and incompetent. My parents still subtly vent their frustrations about how things were back then when I bring up certain aspects of schizophrenia, particularly how I don't believe that it is what they think it is. I remember trying to use psychic attack to get back at my parents for diminishing my freedom, a result of me just being intolerable. I went from getting pulled over with a usable amount of marijuana to getting a DUI at 18 years old in just a matter of a couple weeks. There is an aspect, of schizophrenia - I think - where a person who has it needs to be 'broken in'. I assume it has something to do with tough love and discipline, with a little bit of mastery of over self.

By the way, I think the 7th half-life is a major turning point for those who haven't gotten this far yet. Exercise seems to help quite a bit, even if it's just walking. But those of you who are very self-aware may notice that exercise can only temporarily reduce the effect of the medication. This is okay - the more you get out and experience and activate your chakras, the quicker you'll recover. I think of it like a quote from my favorite anime (Yu-Yu-Hakusho), "It's like strapping weights to your spirit energy. The more you use it, the stronger you'll grow."
 
Spicy food is another thing that can also help speed up your recovery. It speeds up metabolism. But I've heard that it only speeds up your metabolism for the duration that it's being digested and processed though your system. Whatever the case, the spicier - the better. For those that don't like spicy food: suck it up.
 
It sucks to see alot of you having to still deal with this. It does get better with time but you have to put something new in your life, weather its excercise, reading, learning a language you need somthing to take your mind off of the bad.

The little derealization i was experiencing finally just went away :).

Depression is manageable but the anxiety is still high but im working at it
 
Invega IM is a retarded idea for a medication, and in addition is nearly always dosed imprudently excessively by psychiatrists who have relatively little idea what the hell they're doing. Antipsychotics, like anxiolytics, should be momentary treatments for circumstances severe enough to be on the border with, or already overlapping into, a crisis state. In many cases they should simply act as a crutch, allowing the patient to continue to function with a minimum of suffering and handicap while they develop the capabilities to take more permanent steps to improve their situation. Administering an AP as IM completely prevents all identification of any improvements in the patient's state and ability to function by their doctor. It makes it literally impossible to make an accurate assessment of someone's current state.
 
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