How often did you use valtrex?Back from vacation with the folks.
Things continue to improve in cycles ebbs and flows. Tinnitus continues to get milder and quieter. Sometimes it feels like I have a mild tinnitus in the middle of my brain. All symptoms continue to improve with time.
A little over 9 weeks in, hopefully I'm cleared by month 4-5.
I still take seroquel to fall asleep and get close to 8 hours. Weird thing is I don't get sleepy at all anymore during the day, so kinda positive good
Again, this whole thing completely made me rethink my entire life.
I've seen posts where people thought they had Multiple Sclerosis
If anyone on here actually gets diagnosed with MS or has been, you can take Zidovudine (AZT). It was the first FDA approved drug for HIV but works potently on EBV and KSHV both Gamma Herpes viruses and the likely cause (EBV) of multiple sclerosis.
You can get Zidovudine as a mono-therapy on a site like "safegenericpharmarcy" as Zidovir.
Other than posting my slightly milder ltc journey figured I'd post something to help a few that may run into MS.
It amazes me how some decisions can just "F" the fuck out of you, but they help you to reconsider things you otherwise hadn't.
We present the case of an HIV-negative patient clinically diagnosed with relapsing-remitting MS who achieved significant disease improvement on Combiv…www.sciencedirect.com
Keep that in the back of your mind for yourself or a friend. A few of the topic experts know. It's not a conspiracy, industrial incentives prevent it from happening. I know because I came down with ME/CFS from a herpes virus infection 4 years ago and slowly got back to health with the help of Valacyclovir.
I've read several recovery stories here and I am very positive and happy to know some of you fully recovered and some of you are on the right path to recover. I wish best of luck for all of us here who knows this is a real struggle!
I know many are just reading and doesn't want or have the energy to post his symptoms, recovery stories or what worked for him to fully recover, but I want some help right now because I don't know what is happening.
I took an supposed mdma pill (not tested) about 6 months ago. I smoked a lot of weed and drink alchool. I didn't knew if it was cut with something else or how much to take, it was a stupid decision right then. ( I want to mention that I didn't take any drugs before that, just smoked weed from time to time on rare occasions ).
I was extremely social and happy for about 10-15 minutes but after that my heart was racing so fast, I couldn't breath properly (so I took big air breaths for about 1-2 hours) and I almost lost my minds on it. I though that I will pass out or even die but I tried to keep myself calm, drink water and relax.
After 8 hours I could "sleep" for a little bit and then my jaw was shaking so badly for some time and I was so depressed and scared to do anything. I couldn't even sleep because I was afraid anything could happened and no one could take proper care of me. After staying up and just walking like a zombie to keep myself calm and alert, I could sleep that night for several hours and it was a really good nap to be honest. I showered, eat and it was pretty good. I wasn't anyway in a good mental health but I though that it will take some time to heal.
Thing is that the next night I went to sleep and after 2 hours I woke up with a racing heart again and I though that I will die again because I couldn't stay up on my feets, I was very dizzy and couldn't speak. I went into the ER, they did some tests and said that I have some virus in my body and I should not be concerned so much because my body is fighting with it. I puked all night and after that I went home. I slept for like 2 whole days without eating or drinking much water and after that I could say that I was kinda recovered. I could finally talk, walk, eat, drink and carry on with my life but I was in a very weird mood and I had the urge to smoke weed or take any possible drug.
Those symptoms were for about 2 weeks and I knew I was in the withdrawal phase so I just tried to resist so much to this urge with watching movies, speaking with friends, eating, playing games, etc. Anything that could distract me from this.
For the next 1.5 months I was just in a little bit of a depressed phase (nothing to much or serious) but it was something visible there. I can't say I had any other symptoms then, just a little depressed phase and a weird mood like I knew something is off and I'm not like before taking that pill in that night.
Something weird happened in one night. I was just chilling and trying to focus on a project and I felt that my feets and hands are very cold. I plugged in an electric heater and went straight up in bed with some blankets over me. Over 1 hour I was really really cold and I couldn't even feel the heat from the electric heater with my hands which was extremely weird and then my heart was racing again. I really think it was not a pannick attack or anything like that because I was very calm, I didn't thinked that I would die or anything like that and my breaths were normal. That episode was for about 1 hour and then I felt kinda normal. And this is where my journey begins..
For about 1 month I experienced all the symptoms you guys are relating here. I dreamed so much and weird, woke up and felt very dizzy and like my vision was spinning, very fatigue and I was barely eating. I always felt something bitter in my mouth and I couldn't focus on anything. I had brain fog very very bad. I couldn't leave my house for about one week.
After that, everytime I was waking up I immediately left my house and went on a walking for 2-3 hours everyday and tried to calm down myself. I felt like I was living in a dream, coudln't think about my future, everything was so bad and I just wanted to go away.
So after a month of living with all weird symptoms I did some blood test which came up fine. I went home and tried to eat better and sleep better and I felt like I was getting back to normal because I was left with only hard depression ( thinking of life, thinking that nothing is real, thinking that everything we do is in vain because we all die, etc ). I was so depressed and I was only thinking that I need to struggle with this the rest of my life because I will not get better! I googled my symptoms and everytime I though that I have brain damage, ruined my life and I can't do anything about it because the healthy lifestyle doesn't work, the blood tests are fine so only my brain is fried.
But I promise you, you'll get better as I did! This depression calmed down a little bit, day by day by itself. Eating better, sleeping, walking and just doing this you enjoy. I know it's very hard but you need to focus on things you did before all this happened.
Then, I though that I was on the recovery path and everything will be fine in a few weeks or maybe months but I started to have this feeling that my arms are very light and I didn't even felt them. I was playing and I couldn't do anything with my mouse cause I had this feeling of very light hands and then my entire body felt very very weird. I though that this is another response given by my brain and maybe I did something wrong the whole time.
Now, everything was worse. I couldn't sleep for 2 days ( insomnia ), I had depression and depersonalization and everything you could imagine for about a whole month (even earworms with stupid songs). I didn't take anything, just tried my best to keep in a positive mindset the whole time but it was just the worst period of this LTC.
It all went back to normal and today I can sleep almost normally, still having some pretty scary vivid dreams but at least I can sleep for 7-8 hours for almost 2 days.
I want to ask you guys if you have this light body feeling the whole day or it's just me. And if you took anti-depressive or benzos and felt any better. I went to a psyc these days and said that maybe it's from my anxiety this feeling and prescribed me some meds but I'm pretty much scared that those would make those symptoms way way worse. I know it's a 50/50 bet because some people get better, some get worse, some doesn't even get affected from them. I wouldn't take them more than 3-4 weeks because of the withdrawals symptoms and in a low dosage but I'm still a little bit afraid because those can knock you up and make you fatigue which I already am and not feeling so good my hands at all.
Did anyone experienced this? I was only reading that you guys are waiting on the natural way to heal and taking just some supplements which I tried in the past month but I can't say I saw some benefits at all. I know there's no magic pill but at least I want to know what should I do.
See another psyc? Or get some specific blood tests? Because I don't see anyone here having this hands issues like me.
Take care guys!
Hey man,Hey man, sorry to hear what you're going through.
Supplement doesnt work for me as well. I had all the symptoms you described during my LTC, except DRDP, so I dont know how to deal with DRDP. But as for other symptoms you can try seeing another psyc if you feel the need. I consulted with 2 psyc as well. But I don't think you should do anymore tests, because it is super likely that all the test results will come out fine. (it was like this more me) And that will only add to your anxiety/stress/frustration. A lot of people who actually healed, I am one of them, agreed that LTC is mainly your stress & anxiety. Stress is extremely detrimental to the brain and can cause all kinds of crazy stuff to happen. I used to blame everything all the headaches and insomnia on MDMA until one day I accepted that it was my anxiety, so I learned to managed it and eventually successfully got off the anxiety train I started to recover. However, the path to recovery is nowhere near linear, it goes in circle but the good days will slowly last longer.
My best advice is to try your best to chill (Its brutal and difficult i know), relax and stay healthy. Try to do some exercise (cardio) daily, eat healthy and sleep (if you need to take sleeping pill then do it, i was on sleeping med for 3 months until my sleeping pattern returned). And let your body do its part, time will heal you I promise you this.
Thank you for taking time and write back! I really appreciate your support.
My DPDR is almost gone, time and healthy lifestyle really helps.
I went from a big stress factor to somewhere chill where I could stay and eat more better and that really helps over time, if I would compare how I was 3 weeks ago.
This psyc prescribed me 3 meds but I’m taking only one because I’m pretty good with sleep right now and tbh I don’t wanna touch benzos, only in extreme cases. I took yesterday an antidepressive pill and I was so relaxed and pretty happy for the first time in last several months, but I wasn’t like real healed with them ( so take care guys ). Anyway, it was the first day and I need to take them the whole month.
I’ trying like the rest of us eating better, no sugar, meditation, brain exercises, etc. I know it’s a long process but I really hope one day I’ll be back to normal or even better and live the real life.
Btw, you said you had the same symptoms as me. Did you had this weird “ numb “ or weak feeing in your hands? I still have the same force on them, they are not weak or something like that in that way but I feel them very light and at some point maybe numb like they are weird. That feeling extend in my whole body and I can’t really do any cardio because it makes my symptoms worse. Like if I would try to do something I would end up back in my bed and just lay there the whole day.