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๐Ÿ’‚โ€โ™‚๏ธ UK ๐Ÿ’‚โ€โ™‚๏ธ Why Are Our Hospitals SO TERRIBLE When You Are Opioid-Dependant?

My entire records, consulation history, medications, are all readily available for me to view electonically on different tabs of the same portal where I can request repeat prescriptions.

I imagine this is quite common throughout most GP practices in the UK by now.

As to who can access and view it, I believe it's only anyone at the practice that needs to know, and anyone else I give my consent to.

For example my ADHD assessor.

If anyone else can view it, it must be in breach of GDPR, and probably also illegal if they have 'hacked in' without my consent.
 
It all sounds wonderful doesn't it? I can look at my records? No exactly true. As long as what I want to know is actually in my records. And you can only look at the records pertaining to your specific enquiry. If it contains anything the Dr thinks might be harmful to you they can refuse the request. There are so many strings attached to this privilege it's hardly we irth having.

Babygirl. X
 
Recently I have learned that doctors are hit and miss regarding how they feel about certain drugs. It seems the younger ones try to enforce their personality over principle.

Since they do not allow someone to bring in their medications when being admitted, now I do not tell them I have mine with me. If I want to take more of a medicine to deal with acute pain, it is my right to.

They call me the "whole patient" at the hospital. I wear the nurses out bringing me medicine every 60min-90min. I come in with a loaded prescription schedule with meds they are scared to give out in the hospital. And I make them bring me a worthwhile schedule of Hydromorphone every 4hrs for the entire time I am there if pain is involved. I also make sure they Rx Hydromorphone to take home.

I have had my experiences with doctors and nurses that treat me differently because I walk in there with a 400MME daily dependence, a buttload of Clonidine, some Ativan, Lunesta, Vistaril PAM, and others. I understand that not many people come in there with a loaded schedule, so they have to adjust letting go of the reins. What kills me is when they think that because I have a daily 400MME that it will cover acute post-op pain and breakthru pain, hell no like how did you misunderstand that at your fancy medical school.

I always have this attitude -- Hang around long enough and you will learn something new hospital staff. While I am here please go out your way to teach me something none biased and show some compassion. My life sucks ass outside of these hospital doors.
 
It all sounds wonderful doesn't it? I can look at my records? No exactly true. As long as what I want to know is actually in my records. And you can only look at the records pertaining to your specific enquiry. If it contains anything the Dr thinks might be harmful to you they can refuse the request. There are so many strings attached to this privilege it's hardly we irth having.

Babygirl. X
I have a summary page of all 'significant' or 'active' entries, as well as a page containing a summary of most appointments. Some are not on there.

There is a warning along the lines of 'you may find some entries distressing, if you may have forgotten about them', but nowhere does it say you can't go ahead and look. AFAIK you cannot be refused your own right to view your own records. (Unless there are some extreme and unusual mental health reasons I guess, they might try and pull that one, 'for your own benefit'. But that's not how it generally works as far as I've seen.

My issue with this system is the potential for misuse, both now and in the future. Health insurance companies getting access for example, and potentially denying cover. Also during a period of unemployment a couple of years ago, a number of employers wanted to see my medical records. I never got back to those or told them I'd found another job. This had never happened before. I fear its the way things are heading though. Who knows what other authorities can also view.

There is a huge potential for this not to be for the patients benefit, and for it to be misused by various people in positions of power over the individual as some kind of screening tool, which I strongly object to, on privacy grounds.

I'm so glad I asked my Autism assessors not to inform my GP practice. It is not openly visible on my records. Discrimination against people with Autism is incredibly rife. Drs dont take you as seriously for starters, and one you tuber related her experience of receiving 3 job offers, and after passing the interviews, she decided to disclose her Autism, with a view to asking for just some very minor adjustments or 'accommodations' to make things more comfortable for her. I wasn't too surprised to hear that all 3 of her job offers suddenly got revoked. Of course they didnt mention Autism as the reason, as obviously discrimination on the grounds of any type of disability is illegal, but they just made up some other bullshit reasons to cover their arses (asses if you're over the pond.)
 
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You don't have to have a Degree in American History from Oxford Uni to know why this happens.
It started with The Harrison Narcotics Act & then due to the Chinese railroad workers Laws were passed on Opium Control, The UK used to have LEGAL Heroin & Morphine scripts you could get from Boots till the U.N. Drug Czar with the backing of the USA forced the UK to change their Laws & since that day.....well you are filthy Drug Addict & you'll get NO Pity or Mercy from the NHS.

The Heroin & Morphine addicts were sure wanted & needed when they were forced to work in the T.B Wards I know that much ;)
 
How anyone is expected to actually understand what Heroin withdrawl is like WITHOUT DIRECT LIVED EXPERIENCE is a fucking idiots concept.

It's equal to me watching WRC on the telly & reading a few books on how to drive fast then thinking because I have done that I can take a WRC car around the Hills of Wales, we all know how that will end up.

Also the FACT most Heroin addicts are trash doesn't help, we all know the type that stand in Town with cans of ยฃ1 Cider in their hand shouting & being a stupid Moron, that is the stereotype & the NHS WILL JUDGE YOU that way.

The part of Junkie by William S Burroughs where his in the Mental Health Unit says it all how Addicts are viewed, also the part with the Jewish Doctor says it all too.
"You are an addict huh, well you'll not get any medicine here"
 
Ok in the UK you have a right to see medical records. Sounds wonderful doesn't it? Firstly you have yo put in writing your request to see your records. You have to say what you want to see, why you want to see it and they will then look to through the significant records to check that it doesn't contain anything that's detrimental to you.

There must be no mention of others and you only get the records that strictly pertain to the quey you gave. If they think it could cause you distress they can refuse.

But usually one thing will lead to another but you won't get whatever is linked to that specific enquiry. It's so tied down that you rarely get to read anything that relevant.

Babygirl. X
 
You don't have to have a Degree in American History from Oxford Uni to know why this happens.
It started with The Harrison Narcotics Act & then due to the Chinese railroad workers Laws were passed on Opium Control, The UK used to have LEGAL Heroin & Morphine scripts you could get from Boots till the U.N. Drug Czar with the backing of the USA forced the UK to change their Laws & since that day.....well you are filthy Drug Addict & you'll get NO Pity or Mercy from the NHS.

The Heroin & Morphine addicts were sure wanted & needed when they were forced to work in the T.B Wards I know that much ;)

American history.. please. My dining room chairs are older than america ๐Ÿ˜‚
 
I am an opiate addict. I have been since I was a teenager. I'm functional, no one's ever known. I've also worked with patients in hospitals.

Generally, I am super sympathetic to people with this problem because I know exactly how it is. However, after dealing with lots of them while working at a hospital, I'd also groan when I saw it on their chart. I'm not a doctor, so I can't give them what they need. So these people come in, go into withdrawal, become desperate, manipulative, aggressive, agitated. They don't care to be helped for what I'm supposed to go in there to help them with. They just need a fix. While I understand it, it's exhausting. If you're an addict, you know how you are when you're in withdrawal. You're gonna be a jerk, and people don't like dealing with jerks.

Protocol should be better. But my brother is a bad junkie, like the kind who is often homeless living behind the Chuck E Cheese. He got some sort of infection from shooting up and ended up in the hospital. He was such an asshole, telling the doctors they were being inhumane for not treating his pain with shitloads of opiates, they finally relented and just gave him what he wanted. He was in there for several weeks, then he was discharged. He went into such terrible withdrawals that he went totally off the rails. He was wandering the streets, literally got stabbed at a crack house, and ended up in a mental institution. So the answer isn't necessarily as easy as just giving them what they want. He probably should have gotten follow up care. They might have offered it, I'm not sure. But for a long time, he would flatly refuse suboxone, claiming he was allergic to it. In reality, he could just never handle being sick long enough to not go into precipitated withdrawals when he took it. He was always flat broke and couldn't afford a methadone clinic, either. He actually is on subs now and is doing a million times better, managing a restaurant and making 60k a year, got married... I can't believe it. Subs are pretty amazing.
 
No, life circumstances created the shackles. We don't know everyone's story. Most people don't become addicts for a jape.
Compassion and empathy go a long way. Life is hard and shit falls on a sliding scale.
Human minds and human hands definitely have a presence in those "life circumstances" you're talking about. From where I sit, the quality of life for pretty much all of human society could be much better than it is, and that's not me thinking we're going to be living in some kind of rat utopia. I just mean realistically, life and the quality of life, could be a lot LOT better than it is, and the people in charge wouldn't even have to break a sweat making it so. But they don't. And mayhap they never will, probably at least not until aforementioned societies rise up and backhand them a few times.
 
Human minds and human hands definitely have a presence in those "life circumstances" you're talking about. From where I sit, the quality of life for pretty much all of human society could be much better than it is, and that's not me thinking we're going to be living in some kind of rat utopia. I just mean realistically, life and the quality of life, could be a lot LOT better than it is, and the people in charge wouldn't even have to break a sweat making it so. But they don't. And mayhap they never will, probably at least not until aforementioned societies rise up and backhand them a few times.
People need an escape. The NHS is also overwhelmed and ill prepared for the influx of people with various mental health conditions. People self medicate. There is a myriad of reasons people become addicts.

I've got an addictive "personality " so I need to be careful with anything I do or try.

Psychiatry and mental health nursing is a deep hole that'll suck you in once you start in on it and they've not even scratched the surface. Sociology has a big hand in people's mental health. Society as of late has gone to hell in a hand basket. Futures are no longer secure and the most vulnerable in society are scared. Tbh we all should be. The only thing we can do is to be compassionate and empathetic to those struggling and maybe learn to make a molotov cocktail once in awhile ๐Ÿ˜‰๐Ÿ˜†

What doesn't help are twats swanning in on a harm reduction site berating those that seek solace or advice.
 
People need an escape. The NHS is also overwhelmed and ill prepared for the influx of people with various mental health conditions. People self medicate. There is a myriad of reasons people become addicts.

I've got an addictive "personality " so I need to be careful with anything I do or try.

Psychiatry and mental health nursing is a deep hole that'll suck you in once you start in on it and they've not even scratched the surface. Sociology has a big hand in people's mental health. Society as of late has gone to hell in a hand basket. Futures are no longer secure and the most vulnerable in society are scared. Tbh we all should be. The only thing we can do is to be compassionate and empathetic to those struggling and maybe learn to make a molotov cocktail once in awhile ๐Ÿ˜‰๐Ÿ˜†

What doesn't help are twats swanning in on a harm reduction site berating those that seek solace or advice.
Ill prepared maybe, but it's their own doing. If they stopped trying to control people so much they'd be much better prepared. Control criminals... stop making everything a crime, and there ya go.

After quite a bit of thought over my life, you can fit almost every actual crime into one hippy-shit saying: Live and let live. Were they letting live while they were living? No crime. I'm open to instances where that doesn't fit.
 
o these people come in, go into withdrawal, become desperate, manipulative, aggressive, agitated. They don't care to be helped for what I'm supposed to go in there to help them with. They just need a fix. While I understand it, it's exhausting. If you're an addict, you know how you are when you're in withdrawal. You're gonna be a jerk, and people don't like dealing with jerks.
BULLSHIT!!!!!!

I've been more Dope Sick than you'll ever know & I've never been "desperate, manipulative, aggressive, agitated" with anyone who ISN'T my Dealer.
I love these new accounts that pop up & swing their Dick around, Kid get back in the Line & go write another Jackanory.
 
Know what I'm saying @Shambles he / she comes on here saying how people on gear are " "desperate, manipulative, aggressive, agitated" with people just doing their job like all addicts have no manners or Respect.

People like you, @F.U.B.A.R. & myself are & have been massive Opiate addicts & we are also quite smart, you know what El Topo is for one example (the movie) which says so much, it's easy to make all opiate addicts out to be the stereotype but that isn't correct.

I get very upset when people try to speak for me & make comments about my manners.
 
For the last three months someone I know has been coughing up blood. Then a month ago they picked up a back injury. There response to both issues has been to take even more H. By that I mean over a gram a day and in this area it's around 53% pure (I do bits and pieces for the local HR agency and they get told by the local plod how strong the gear is, so that's the AVERAGE purity but it's always around 50%).

So it turns out that for the last few weeks they have been getting lay-ons of a gram or more from absolutely every dealer in the city. A weight in at least one case.

A couple of days ago they began to suffer seizures and wound up in hospital. Along with dehydration and malnutrition, it turns out they tested positive for covid along with two bacterial infections (so far) and are waiting for the TB test results. However you look at it, this isn't a good thing.

But they are sort of in contact with the local HR agency so on being admitted, they were provided with a sizable daily dose of methadone. But since admission they managed to get one last lay-on delivered to the hospital!

But even in quite a large community, it will soon become common knowledge that this person has essentially maxed out their credit with every single dealer with absolutely no way of ever paying. I do not see any good outcomes. I had hoped that they would stick to the methadone so at least they could drop the H abd organize to slowly pay off the debt. But it does seem like this person is intent on self-destruction.

I dread to think of the possible outcomes. I can't think of a good one. My wife was possibly the most realistic when she simply said 'well, maybe it would be better if he dies - because if he's discharged, he won't last long anyway.' I know that sounds cold but every single person has done their best to help. But none of US can pay that scale of debt. Not in a million years.

To end on a positive note, in the UK at least, as long as you are in contact with your local HR agency, they will talk to the hospital and if someone is clearly very ill, opioid dependence is seen as a minor issue i.e. the doctors would much rather provide an accurate amount of a pure compound so that AWS isn't yet another set of symptoms that might be masking something else.
 
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American history.. please. My dining room chairs are older than america ๐Ÿ˜‚
There is still history here... And AMERICA... has quite a long history that I think your "dining room chairs" were probably saplings for while things there were in their later stages. South America, North and Central America... there is much history here. Not just "The U.S."
 
BULLSHIT!!!!!!

I've been more Dope Sick than you'll ever know & I've never been "desperate, manipulative, aggressive, agitated" with anyone who ISN'T my Dealer.
I love these new accounts that pop up & swing their Dick around, Kid get back in the Line & go write another Jackanory.
Hey, sorry, totally did not realize that my post would be that offensive. I am in withdrawal at the moment. I feel all of those ways, and I figured it was a pretty universal feeling. Pretty much only posting after I've taken a benzo to get to sleep, feel talkative, just wanted to share my experience. I'm definitely not an expert and will try and be more conscious if what I'm typing is coming off that way.

You're right though, everyone definitely isn't like that. Just the big majority of people who ended up in the hospital I worked at with "drug seeking behavior" on their chart were like that, and almost every time I went into one of those rooms, it was gonna be a very difficult treatment. The people were sick and so desperate, they'd do anything to feel better. They also generally weren't interested in treatment to get off, just wanted a strong opiate to get rid of withdrawals. These were usually homeless type people with mental illness. And it did end up making the workers jaded, even if that isn't good or fair, whenever they saw anything about drug use in a medical chart.

Anyway, I have some sort of weird social phobia. Any time I say anything, I get this feeling that people are going to think I'm an idiot and an asshole, and I should have never said it. Maybe the thought isn't irrational after all, lol. So I promise, I won't post anymore. I'll just remain a reader.
 
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Ok in the UK you have a right to see medical records. Sounds wonderful doesn't it? Firstly you have yo put in writing your request to see your records. You have to say what you want to see, why you want to see it and they will then look to through the significant records to check that it doesn't contain anything that's detrimental to you.

There must be no mention of others and you only get the records that strictly pertain to the quey you gave. If they think it could cause you distress they can refuse.

But usually one thing will lead to another but you won't get whatever is linked to that specific enquiry. It's so tied down that you rarely get to read anything that relevant.

Babygirl. X

Well I simply said 'I know of threee errors in my medical records (and specified them with time/date/place/witness) one of which has been wrong for over 50 years. I feel it reasonable to ensure that there aren't more'.

I've also caught hospital records being faked and had it altered before it even reached my record. I did not refuse a lumbar puncture - two doctors attempted the procedure over what was quite an unpleasent hour. But I have a compressed spine and told them beforehand that they were unlikely to manage it. That they felt lying was more appropriate should be a concern. Maybe saying 'unable to undertake procedure' would have made them look bad? No idea. But if they lie about that, what else are they prepared to lie about? But I also mentioned that - to see if it had been altered again. So who knows? By the time I got my records - it DID say that the doctor (not plural - one got off the hook) 'had been unable to complete the procedure due to spinal compression in the patient'.

What I WOULD say to anyone in the UK is that HR services have to ask for permission to contact your GP. Say NO! I know for sure that the presumptive tests they use cannot differentiate between codeine, dihydrocodine, morphine and heroin. So if you have taken a couple of Co-codamol, say you don't trust them not to assert it IS something else. Because the DO.

In essence, don't assume that anyone else is in charge of your health. At the end of the day it's your health and your responsibility.

I will conclude by noting that the BNF guide the the prescribing of strong opioids does not mention the word 'pain' ANYWHERE. The far more subjective 'to alleviate unacceptable human suffering' is in fact the metric used. On a personal note, I also call BS on 'pain scores' - the only time you NEED opioids is when you are in so much pain, you can't talk.

I've mentioned previously that it's still important to be in contact with your local HR agency because if you are, the hospital will at least provide methadone simply so that the symptoms of AWS won't hide an underlying illness. The person I know had been at it for 30+ years and I was quite surprised at just how much methadone they were given. In my estimation they wouldn't suffer AWS (so I'm sure you realize that it was a sizable amount).

I might add that this isn't a one-off. A few years ago someone I knew got an infection (femoral) which went untreated. They had to essentially be dragged to the hospital but because they were in contact with their local HR team, the registrar actually asked them how much methadone they WANTED! That was in a different city. So at least in the UK, it does seem that as long as you are in some sort of contact with your local HR team, doctors can be quite reasonable. But only because a patient in AWS is going to have symptoms and that may prevent effective treatment - so the goal is always to seek the best outcome.

BTW The NHS isn't trying to HIDE your records - if you reach my age, collating and checking over five decades of records is costly. The fact that my record STILL failed to note I was allergic to the medication after 50+ and after having the clinicians having been told at least three times (I only recorded the last one in detail) may well have made whoever it was concede I had reasonable grounds, I don't know. I just know you can do it. People seem to assume that your NHS medical record is on a computer - wrong. Almost certainly it's still mostly paper records. If you have lived in a number of cities and indeed a few nations, chasing it all down is a major endevour.
 
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