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Misc Narcolepsy or ADD - Doctors Have Failed to Help Me

Novel Zephyr

Novel Zephyr

Greenlighter
Joined
Jun 4, 2009
Messages
18
Location
Indiana, Pennsylvania
I've been ineffectively "treated" for depression over the last three years by rural Pennsylvania's sorry excuse for a welfare system. About a year and a half ago, my doctor decided that I should get a test for narcolepsy, and sent me to a specialist, for whom I had to wait three months, and who (rather than doing the test) sent me to another specialist, for whom I had to wait another three months, and who (again, rather than performing the study I was told that the first one would do) sent me to another specialist, for whom I had to wait three more months.

After the fourth recursion of this nonsense, and upon being directed by the third specialist to the specialist whom my psychiatrist originally told me to see in the first place (without anything being done by any of the others, besides telling me "I don't see why he sent you to me... go see this guy") I talked the original psychiatrist into diagnosing me with ADD and prescribing Concerta. I have taken it as prescribed for six months, now, and it was effective for about the first three weeks, after which time I returned to being unable to stay awake more than 12 hours per day and being drowsy through most of them.

I suspect that Provigil may be more effective than Concerta, because my histamine system might be more relevant than dopamine's; however, psychiatrists keep telling me that a prescription of Provigil requires that ever-elusive test that I spent a year getting no closer to taking.

I have tried damn near every other legal alternative, from multivitamins to completely avoiding all exposure to fluoride, and from taking melatonin when I sleep to damn near every diet you could possibly imagine. Doses of DXM (higher than recommended for a cough, but lower than psychedelic quantities) are the only effective remedy that I've found, but its side-effects boarder on intolerable and I can only convince myself to take it about three times per week.

I'm about prepared to move somewhere urban and buy amphetamines off of the street (I've lived in three different mid-population rural towns, and can't find it cheaper than <SNIP> cents per mg, and only in the form of Adderall), or order deprenyl off of the Internet and mix minuscule quantities of it with my Concerta. The dangers of these choices are obvious, but I suspect that they're relatively safe when compared with allowing myself to further drown in these doctors' incompetencies. Please offer any relevant thoughts.
 
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From what I've heard docs are more likely to prescribe Provigil than Ritalin. Probably because there is less risk of abuse.

I find it pretty weird your doc is unwilling to prescribe it because of some test he wants. In terms of actual stimulant effects it is definitely weaker than Ritalin. It seems to me if you went to a regular doc and he knew you were prescribed Ritalin, if you told him you'd like to switch to Modafinil he wouldn't have a problem with it.
 
Its amazing how much doctors lie if they think its easier.
On another forum I got into an argument with this guy, because his doctor didn't want to give him oxycontin and told him an OC80 continually releases 80mgs ofr oxycodone for hours and contains 240mg of oxycodone. I told him I don't give a shit what you're doctor said, they are human and they lie too. He wouldn't believe me until I directed him to the manufacturers website where they had it posted in the drug information.

For modafinil a simple allergy test would do if any at all is necessary. Like taking a small piece of a pill and seeing if you have any bad reaction. I know a lot of people on another forum order it from online pharmacies a lot, they all seem too prefer Ritalin though. Generally saying modafinil is weak compared to Ritalin.

For you're specific condition it could be better though. Its at least worth a try if you're miserable every single day.
 
No - you need a shrink not an M.D. Many general doctors would, I imagine, not even touch complex drugs like modafinil and ritalin. For the same reason they never touch things like anti-psychotics.

It sounds to me like some of these guys may not believe your story? Is there a chance they think you're fishing? I think you need to see a shrink and just fucken level with him, like give it to him how you gave it to us.

S
 
I was prescribed modafinil for lethargy associated with depression. I was sleeping for like 24hrs at a time during the worst of it. It's hard to say how effective it was. Definitely not as intense as ritalin, which I've only ever used recreationally.

But then again, modafinil is a 'wakefulness promoting agent' rather than a total stimulant.

S
 
Modafinil is now the good guy among the pharm stims. Other amps like Ritalin are the villains. This may change as more people abuse Modafinil. The list of bad side-effects of Modafinil is growing. I think it's safe if you don't take it daily.

If you do you will develop funny side-effects like short-term amnesia. Putting your credit card in your shirt pocket instead of putting it in your wallet, and getting into a sweat thinking you've lost it. Things like that.
 
drop acid. no shit.

no really, i'm serious, if therapy is what you're after, you'd be better off trying to reset your brain with psychedelics than scoring amps off the street.

i can't really see amps as a long term solution for anyone, anyhow.

don't think that therapy is limited to doctors, shrinks and prescriptions. there's always hope, and everyone has their own remedy, you just need to find yours.

think of it as an adventure :)

(i wasn't seriously condoning you drop acid. wait, maybe I was a little bit)
 
I think the above post is dangerous and irresponsible. Not all people can take acid; people like me can't even smoke pot. Of all the drugs I've done pot has fucked me up the most and things like acid and mescaline would probably make me insane. Only you know your responses.

S
 
^ i was speaking figuratively, trying to highlight how irresponsible reckless self-medication can be.

obviously such subtleties are beyond you
 
There is nothing figurative about that post, it's 100% literal. Either that or it's terribly written. And what, you're denouncing self-medication by advising acid use?

I'm not trying to bash - I just don't think that's good advice for all, or even most, people.
 
okay

the second half of the post was to be the substance. anyway, novel zeyphr asked for thoughts on the subject, not advice. i merely proffered mine. furthermore, he/she mentioned some success with DXM, a dissociative hallucinogen. I figured psychedelics were more closely related to DXM perspective-wise than amphetamines, and without the nasty physical addiction (read:less physical addiction) of amphetamines. it seemed like a logical progression.

from what I gathered, the OP wasn't asking for conventional advice. i wouldn't have mentioned illicit drugs if that was the case.

i don't understand how psychedelics (dodgy categorization) would be any more destructive than scoring amps off the street. in fact, i'm of the opinion that, if undertaken responsibly, it could be found to be quite therapeutic.

and the "adventure" i was referring to was the OP's discovery of his/her own life remedy, which may or may not be completely unrelated to drug therapy. i wasn't referring to a drug-fucked, tripping balls, odyssey of the soul.
 
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I'm all for a person taking their health into their own hands but street amphetamines at least around here are not particularly "clean" substances. Whether or not you'd actually benefit from amphetamines is another story.

I'm a bit confused as to what your actual symptoms are. Is it narcolepsy or ADD? Or are none of the doctors sure?

If you're trying to treat yourself for ADD symptoms then amphetamines could potentially help you if Concerta is not. I don't have much experience with methylphenidate but after trying a couple of just threw the rest out because it didn't feel right.

And I do agree that psychedelics have the potential to provide beneficial experiences but it's impossible to predict how somebody will react and they at least from my perspective they don't seem be particularly relevent to the symptoms that the OP is having.
 
I do not make many posts here, but I think the advice to use acid to treat is scary. I know that people react to psychedelics very differently, and I know that I personally could not handle lsd. I think it crosses the line a bit to advise someone to use lsd as a therapuetic answer so casually.
 
I think LSD is an amazing tool, and it definitely would be promising for chronic fatigue/narcolepsy.

However - it isn't for everyone. I also think amphetamines can be a long term solution for someone, especially if daily use isn't going to occur (or if it isn't problematic).

The best advice I can give you is to leave the state you are in, and find a different doctor (I would aim for a psychiatrist).

A sleep study may or may not be useful depending on the outcome; I am not sure if it is worth doing or not.

Finally, I edited your title so it is a bit more descriptive.
 
suessmayr said:
Not all people can take acid; people like me can't even smoke pot.
S
Click to expand...

i can take acid no problem unless i'm somewhere stupid like a jail cell or such.
i've never had a bad acid trip. i've had unpleasant ones but learned from them and made positive life changes.

marijuana gives me full blown schizophrenia symptoms. auditory hallucinations (voices), paranoid delusions, makes me close to incoherent, and i talk to myself.

i get pissed off when hippies say "weeds from the ground man god made it it's natural it's harmless it's not a drug" because it is harmful as hell to some people, catalyzing schizophrenia or starting long term anxiety problems.

i agree with the other dude acid is the best anti-depressant provided you take it in a good set and setting with a positive person who is experienced in it's effects.
 
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