I started moda 1/24 and had work that day…. Holy crap!!!! Is this how people not afflicted with fatigue feel? I will preface this by saying that I care for people affected by dementia/Alzheimer’s, my job is both physically & mentally challenging. When I got ON last Dec I took about 1 month off between the not being able to see in my right eye, the drs appts and recovering from steroid therapies I just didn’t work. In that time I learned that MS related fatigue was a very real thing and that crying before shifts because I didn’t even have the energy to think was not normal.
Since dx 4/21 I have been PRN so basically I pick up the days I want. I was still calling off even if I was only working 1 day a week. I had ok weeks where I could work 1 day at the beginning of the week and 1 day at the end, but that just wasn’t cutting it for me financially or otherwise.My health psych who specializes in MS fatigue even mentioned at our last session maybe referring me to a social worker to talk about going on disability, I guess that is sort of when I broke down and realized I needed to put my anxiety aside and see if my fatigue could get better with meds….. IT DID!
I took modafinil about 12pm from modafinia (that’s when I picked it up) I take it earlier now. I was worried that it would either be way too much and I would feel ‘tweaky’ or that I wouldn’t feel anything at all. I felt good! I had my moments of being tired but not anything over the top and for the first time maybe ever I felt like this was how “normal” people felt… I left feeling so good about how much I got done! I left feeling like I pulled my weight completely and like I did my very best.I also noticed I feel less scatterbrained completely and that my emotional regulation is way more manageable. I am just so happy I was able to do this for myself. Thanks for listening!!
Since dx 4/21 I have been PRN so basically I pick up the days I want. I was still calling off even if I was only working 1 day a week. I had ok weeks where I could work 1 day at the beginning of the week and 1 day at the end, but that just wasn’t cutting it for me financially or otherwise.My health psych who specializes in MS fatigue even mentioned at our last session maybe referring me to a social worker to talk about going on disability, I guess that is sort of when I broke down and realized I needed to put my anxiety aside and see if my fatigue could get better with meds….. IT DID!
I took modafinil about 12pm from modafinia (that’s when I picked it up) I take it earlier now. I was worried that it would either be way too much and I would feel ‘tweaky’ or that I wouldn’t feel anything at all. I felt good! I had my moments of being tired but not anything over the top and for the first time maybe ever I felt like this was how “normal” people felt… I left feeling so good about how much I got done! I left feeling like I pulled my weight completely and like I did my very best.I also noticed I feel less scatterbrained completely and that my emotional regulation is way more manageable. I am just so happy I was able to do this for myself. Thanks for listening!!
