HPPD. DP/DR. 2-year long Tinnitus case.

Docus

Bluelighter
Joined
Aug 2, 2008
Messages
143
Location
Belgium
So I have HPPD. All it took was a few shrooms experiences. It fucking sucks and I've had it for 18 months, it has only gotten worse since. I can't drink alcohol, smoke weed or even take benzos. Every single fucking drug affects me. I've been sober for months. I can't stay up past 4 AM or my symptoms get permanently worse. If I drink more than a sip of beer, my symptoms get permanently worse. I quit smoking cigs because even that made it worse.

I have tried dozens of drugs including benzos L-tryptophan and 5-HTP, and EVERY SINGLE ONE OF THEM made my symptoms worse. When I take just one wrong step, such as partying 'till 6 in the morning, it takes about a month for the visual and mental 'damage' to go get better.

Recently I've developed derealisation, the worst possible HPPD symptom which I hoped I'd never get. It has gotten pretty bad. I assume the 5-HTP is what caused it. It heals VERY slowly. I estimate it'd take about 6 months to go away completely, at this rate. That's assuming I never lose any sleep, stay sober, and don't get stressed out (which is a real hard fucking task considering my condition).

I have had raging tinnitus (ringing ears) for 2 years due to exposure to loud music. There hasn't been a party or concert where I didn't wear earplugs since first onset. I occasionally get ridiculed by random people for wearing them. For a while I was okay with my condition but recently it has spun out of control, I absolutely cannot go to parties anymore EVEN with the strongest earplugs money can buy without increasing the ringing in my ears for more than a week afterward. Music is my life. I used to listen to music 8 hours a day. Right now, I can't even watch TV without the volume turned way down, in order not to worsen the ringing. I've been a bunch of ear doctors and there's nothing else they can do, they're puzzled. I have to give up going to parties and pubs, they say, because that's the only thing left to do.

I feel like I have reached my personal limit. I am a very strong person, I've done every possible FUCKING thing in my power to get back to normal, I've had to endure 2 FUCKING YEARS of having 2 physical/mental conditions with high suicide rates at the same fucking time. I didn't fucking sign up for this when I went to that first party or smoked that first joint. Right now I can't even listen to music played at normal levels in my own home, and I can't even drink 2 beers without being permanently punished for it a couple of days later.

What the fuck am I gonna do.

If I could magically cure even one of my 2 conditions by killing 5 people, hell, I fucking would.

written 30 mins later :

I always get like this when I can't take it anymore. Sometimes I just let it get to me. I'm gonna post this anyway to show you guys what I'm going through. Know that compared to some people, your problems sometimes don't really seem that bad.

I wish someone could tell me what I have to do.
 
I haven't read to much about HPPD. I intend to do some research tonight. After a few days here you might have us move this thread to Psychedelic Drugs. Off the top of my head I'm wondering what newer anti-psychotic do for HPPD given their effects on 5-htp-2A. Sorry things are so rough now :( If the Doctor's aren't figuring out an approach to the tinnitus I'm kind of doubting we'll have much more to offer. Is there a database of treatment studies going on in Belgium? If there is, you might investigate if there are any studies you'd be eligible to participate in.

EDIT: After reading several articles it turns out APs worsen HPPD so I struck my off the top of my head idea.
 
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These things aren't really making your HPPD worse, you're just suffering from hypervigilance from your drug experience(s). It's a form of PTSD. Your mind is stuck in hyperdrive.

In my experience this will pass in time. The first 18 months after I got DP/DR and HPPD were absolute hell. It took about 5 years for the symptoms to subside completely.

I still won't take SSRI's and I'm wary about foreign substances. Overall though, I've made good progress.
 
Well the literature I'm reading now says atypical APs tend to worsen HPPD so I'm going to go strike that in my earlier post. I'm not seeing much that helps other than moderate benzos, avoiding stress and sleep deprivation plus time and patience.
 
Have you ever considered that many people don't ever get to be normal, and that many of them go through life with a bunch of fucked up shit but still manage to enjoy themselves?

Like there are single moms with aids, and people with debilitating diseases putting themselves through college. I know this chick with some genetic thing that left her paralyzed sophomore year of high school and in pain to boot. She's finishing college now.

Theres a weird line between expecting things to be a certain way, and dealing with/getting what you want out of life the way you're served it. I think it sounds like your situation forces you to confront that much more harshly than most people, but its still your choice how to look at it.
 
Looking at that post now, I feel remorseful. I don't normally get all destructive, angry barking-at-the-moon like that. That post really isn't me. I'm usually quite happy during the moments where I'm not having one of my frustrated rant-athons (which are really rare and far in between). Sometimes I just lose my mental guard and let the mood swings get to me.

To tell you the truth, I'm bothered alot more by the tinnitus than the HPPD. HPPD has the potential to get somewhat better (at least the dp/dr will), while tinnitus will, unfortunately, most likely be there forever. I should really be happy I can't drink or do drugs anymore, because this way I'll never have to deal with addiction. I really haven't a single clue about what HPPD really is, whether it's some kind of PTSD, mental, physical or whatever. But I'll tell you guys one positive detail about my condition: taking hallucinogens, for me, only worsens the symptoms about as much as non-psychs would. I know this from experience. So even if I can't take other drugs, I can still trip or take MDMA occasionally (once every couple of months) without running into any lasting danger. I wouldn't want to use harddrugs in the same fashion because I simply don't get anything 'useful' out of those experiences, besides leaving me wanting for more and reminding me of the life I feel I've been 'robbed' of.

Lately I've been having moments where I'm desperately clinging to my past drinking and drug-taking life, alternated with moments where I no longer care about hard drugs or HPPD, and looking forward to my future life of being sober, free of addiction, with only sporadic psych use to change my point of view.
I'm absolutely sure the latter moments will win out on the former, if I can summon the willpower to choose the right thing. It isn't easy but it's absolutely necessary.

Theres a weird line between expecting things to be a certain way, and dealing with/getting what you want out of life the way you're served it. I think it sounds like your situation forces you to confront that much more harshly than most people, but its still your choice how to look at it.

I agree with you. I try to my hardest to remember that fact when I run into trouble, but sometimes you just lose your grip on your own anger and it takes some time and venting to put the beast back into its cage.

Thanks for writing that.

I suppose that somewhere in the distant future, I'll be sitting outside a café sipping ice tea thinking to myself 'hah, life is great now. How strange to think that in the past, I used to be so angry and bitter for some reason that I can't even remember now. Here's to the present.' %)
 
Nobody has a grasp on the neurological mechanisms that drive things like HPPD, DP/DR or even tinnitus.

I suspect your tinnitus will improve over time as well.
 
Hey man, I've had HPPD for about a year, its a real bitch, but I think I'm somewhat over really giving a shit about it now. I was on benzos for a few months and I'm almost off them now, and that time has really allowed me to come to terms with it. I still use drugs, even sketchy new things like Mephedrone, I find it is less annoying when I have it and at least I'm getting high so have an excuse to have it, rather than sober and it being a very annoying reminder of drug use.

Maybe mine is pretty mild in comparison to yours, but I don't find Alcohol or Nicotine make it worse at all, nor benzos, benzos, especially clonazepam take it away for me.
 
Hey mate, yeah, I suffer from HPPD as well, I've had it for just over a year now (turning 18 2moro, and my first recollection of actually noticing it at 1st was on my 17th b day) and still haven't come to term's with it...
I still take drugs, no where near as much as what I used to though. And downer's don't seem to effect my vision too much (but still has noticeable effects)
Also if I don't sleep by a certain time, it gets stupidly bad and is not something I enjoy...
Sorry to hear about your tinnitus also mate, I hope it's something that fades with time.

Feel free to send me a message mate, I've been through a whole lot this past year, and am keen to share any information that you might want :)
Be well mate, keep in touch =] xx
 
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after 2 months i just found out i have it, and the tinnitus is the most annying part for sure. i dont know how u guys smoke weed with it i smoked weed for 6 years every day b4 i got it but now when i do im super sensitive to sound and i trip like im on asid for that duration of time. havent tryed drinking for a while but i think i feel out of it b4 i ever get drunk. docs have no clue about this disorder which is the most annying part. btw i did mushrooms and was fine im almost 100% it was the mdma i did because i got it about 3 months after that. it really is ez to live with and i cant say i miss weed that much, (maby its because i know how anoying sounds become now when i smoke it, or maby because i never really needed it and just needed a reason to quit). if i could get rid of the tinnutus i wouldent even mind having it, visual snows not that annoying and i don't have any lack of energy at all. but the tinnutus makes it impossable to sleep sometimes. i think im gona try drinking again because when i started to get it i remeber i get fuckin wasted and didnt really phase me. now i get paranoid after the first 2 drinks so i stop thinking its making it worse. but weed really is a no-no now its not in my head i litterally trip fuckin balls and become so sensitive to sound it makes me twitch like a seizure. i got a great girlfriend who is tottally cool with it which definatly helps alot. as for the tinnutus ithink im gona buy a loud fan for my room because its got the most annoying frequency and the reason the ear docs areent gona find nothing is cuz its not coming from your ear or mine for that matter. if u listen close u can hear it coms from the center of your head. hows that for a mind fuck (get him to the greek :p)
 
I have all of the above man. It is never dark.. I always see static and color specs over everything, sometimes tunnels, and it gets worse the less sleep I get. I never hear silence. Always a buzzing drone. I have intense depersonalization/derealization/dissosiation. It took me about 3 or 4 years of it to get used to it and be ok with it. Problem is, I got myself addicted to benzos, and the withdrawal is sending me back to day one. So my advice to you is to stay away from anything that is addictive. And just accept it. I know it is bad. But eventually you just come to terms with it and can tune it all out. Trust me you can even tune out the ringing. The first 2 years I was a mess.. But it got better. I fucked it up but it had gotten better lol. My advice to you would be to focus on spirituality. Can you astral project? That is often a strange "gift" given to people who were messed up by psychedelics. I just turn on some tool and let the intensity come into me. Prying open my third eye. I figured that the reason I was doing psychedelics was to gain enlightenment so I might as well make use of the fact that I always feel like im on psychedelics lol. Humor is key. Just keep it. I make fun of the fact that I can't even fucking see ANYTHING clearly cause it is all covered in static and color specs.. and guess what it was from? fucking nutmeg. Not the syd, not the shrooms,. not even the dissosiatives. Fucking nutmeg when I was 16. It is kinda funny. Peace man. For the both of us.
 
Is HPPD really that easy to get from psychadelics. I've tripped about 25-30 times in the last couple of years and never noticed any odd visuals after the drug has worn off. I assume HPPD must go away somewhat or completely leave with abstaining?
 
I don't have statistics but if the graduations were frequent, common, uncommon, and rare, I'd pick rare. The folks in the Psychedelic Drugs forum here might have more solid data and have better sense about how often hppd occurs.
 
Is HPPD really that easy to get from psychadelics. I've tripped about 25-30 times in the last couple of years and never noticed any odd visuals after the drug has worn off. I assume HPPD must go away somewhat or completely leave with abstaining?
from what i recall when i read up on it (when i got it, subclinical since it doesn't negatively effect my life/behavior... i do much prefer white text on black background though),

if you get hppd during one of your first trips, it's permanent-semi-permenant. if you get hppd after tripping too often at some random point in your psychedelic career, it'll go away within weeks to months

if you have an uncomfortable/stressful trip, your chances of HPPD go way way up. mine started after one of my first trips (on LSA). trees/sky/nature/everything does not look a bit similar to before that trip, but i prefer it this way, with sharper outlines and more brilliant colors and undescribable foliage

pretty much any drug does increase it. mine wound down over the years, i have had little access to psychedelics and don't enjoy stims (i do smoke everyday). though i got to taste hppd fully again during benzo w/d
 
Anti-psychotics can cause HPPD, due to the blockade of the 5HT2A receptor (Theory that HPPD is caused by the blockade). In some people with no history of psychedelics, they can cause HPPD.
 
Hey people...I realise this thread is really old, but i was just wondering if you were feeling any better? I'm dealing with some of these symptoms (seems to be slowly getting better), but was just wondering if you have made a full recovery? Thanks
 
I have all of the above man. It is never dark.. I always see static and color specs over everything, sometimes tunnels, and it gets worse the less sleep I get. I never hear silence. Always a buzzing drone. I have intense depersonalization/derealization/dissosiation. It took me about 3 or 4 years of it to get used to it and be ok with it. Problem is, I got myself addicted to benzos, and the withdrawal is sending me back to day one. So my advice to you is to stay away from anything that is addictive. And just accept it. I know it is bad. But eventually you just come to terms with it and can tune it all out. Trust me you can even tune out the ringing. The first 2 years I was a mess.. But it got better. I fucked it up but it had gotten better lol. My advice to you would be to focus on spirituality. Can you astral project? That is often a strange "gift" given to people who were messed up by psychedelics. I just turn on some tool and let the intensity come into me. Prying open my third eye. I figured that the reason I was doing psychedelics was to gain enlightenment so I might as well make use of the fact that I always feel like im on psychedelics lol. Humor is key. Just keep it. I make fun of the fact that I can't even fucking see ANYTHING clearly cause it is all covered in static and color specs.. and guess what it was from? fucking nutmeg. Not the syd, not the shrooms,. not even the dissosiatives. Fucking nutmeg when I was 16. It is kinda funny. Peace man. For the both of us.


WOW you just described my visual problem i developed when i was 10 years old after my first drug experience. Static vision. You look at the sky which was once beautiful and crystal clear. And now their are colored specks like static on an old tv set with bad reception. At night you're vision is significantly impaired. It's impaired against light surfaces. It's scary shit and i wish i could get rid of it.
 
Hey man, i just read your article, and it looks like i have pretty much the same shit as you, that being said, i would say my HPPD is quite Mild, and not wanting to make it worse, i decided to never ever take psychadelic drugs anymore, as i really dont want to make my case already worse. That being said, i have tinnitus, due to loud noise exposure, and knowing that i had quite sensible ears, over time they got worse and worse, now its to a point where when im in complete silence, trying to study, the ringing really pisses me off, and i starts to make me feel anxious knowing that ill have this for the rest of my life, and that it can ONLy get worse, much worse....
This is why im reaching out to you man, you posted this 7years ago and i wanted to know how are you today, and if you could tell me what your life is like today, with the conditions you have now. Im currently starting a small career in the music industry, DJ and producing, but with my tinnitus, im pretty fucked. Music is also my life, and without it i would see a reason to live....
I hope this gets to you, as i would really like to know how are you currently :)
Cheers,
Marko.
 
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