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  • AADD Moderators: swilow | Vagabond696

Hepatitis C

s1mplicity

Greenlighter
Joined
Dec 15, 2014
Messages
6
Just wondering if anyone has any experiences to share regarding Hep. C? Or any tips on minimising the impact?

Ive been HepC (GenoType 3) Positive for just over 3 years, and booked in for a FibroScan this month - looking into starting treatment.
 
If you're in Australia, many of the state-based hepatitis organisations provide a phone support line. They can help you talk through decisions about treatment and give you more information.

Hepatitis NSW can be reached on 1800 803 990 and Hepatitis Victoria can be reached on 1800 703 003.

Good on you for taking care of it early!
 
I did intrafuron treatment back in 2008. i was lucky and my HEP C was cured/ wiped out. I still have liver function test's and my level's are pretty good compared to before the treatment.

The treatment does make u feel sick but it's more of a physical sickness than a mental sickness. Get your GP to book u into a liver specialist at your local hospital. My treatment was a injection once a week and some pills everyday

Good luck
 
ive had it for about a year now... my doctor said that most people dont see any negative effects from it for about ten years and atleast where i live, the state will give you one round of treatment for free... and from what my doc said it was a pill you have to take for 90 days and each pill cost a thousand fukin dollars, smh...

but as far as keep your liver health, ive always heard to make sure your drinking water and try and be healthy... dont think theres really any secret to it...
 
ive had it for about a year now... my doctor said that most people dont see any negative effects from it for about ten years and atleast where i live, the state will give you one round of treatment for free... and from what my doc said it was a pill you have to take for 90 days and each pill cost a thousand fukin dollars, smh...

Hrmmm... yes and no. There are new treatments that are just one pill a day, with the price currently sitting around $90,000 for a full course of treatment. There's a lot of activism going on at the moment around this, and the committee that decides whether to list things on the PBS should be making a decision about whether to list these drugs in the next few months. If they do, it won't cost any more than a regular prescription.

BUT. There are existing treatments that ARE listed on the PBS. There's a lot of reasons why they're not as good - they have a lower success rate (around 70% compared to 90% for the new treatments), they involve a weekly injection of interferon and several daily tablets, and some people experience a bunch of horrible side effects. Still, if you can get through the treatment and your hep C responds to it, that's a bunch of potential liver cancer and early death you're not going to get.

but as far as keep your liver health, ive always heard to make sure your drinking water and try and be healthy... dont think theres really any secret to it...

There's a lot of little tips and tricks that various people swear by, but drinking water, eating a low fat diet, avoiding alcohol and exercising regularly are pretty much agreed across the board to be beneficial to people living with hep C.
 
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