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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) Version 5.0 ~ V

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namnoc16 said:
Is tapentadol available there? It affects the same receptors(mu) as opana and is effective in treating pain. I had it but I had bad side affect where I couldn't keep my eyes open on it. I'd nod but usually opiates/opiods have opposite effect on me.Anyway I have a friend on it and he thinks it's miracle drug it crosses the blood brain barrier but very minimally,more about pain relief then high.
 Sorry should have made it clear talking to runtoparadise!
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It's been available for a few years now. My PM incremented it into my oxy schedule when it was brand spanking new, with the view of upping the Tapentadol & reducing the oxy. (100mgs= 10mgs oxycontin).

Unfortunately the SNRI effects became too nasty for me at higher doses & I had to discontinue that regime.

Grateful for any ideas though, thanks dude.

Rtp
 
tnvol44 said:
DixiChik that's a great statement,it's all on point,and I recognize your feelings as they are very familiar to me.I wish everyone could stand in the shoes of someone with chronic pain for a week.I would give anything to not be in constant pain,so many doors would be open for me right now.Sometimes it is a battle to not just walk in front of a bus.I am sorry you go threw this too but am grateful that I know someone going threw the same thing as myself!
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1 no one is hijacking a thread
2 you are all to weak willled deal with pa
3 ^ thats why u use strong drugs but then your body gets used to them and you have to have them im a doctor so I think I know im just tryna help you all but if your to pathetic to help yourselves then their is nothing
 
Your a dr. but yet your posts are incoherent? Your grammar is also seriously lacking sir.
Rtp how do I ignore someone? Is there a button I can press or something?
 
^Haha, I don't know @Cliffy, I do BL from my phone.

Why the fuck cant this troll be banned mods? He's like, 12, & shouldn't be fucking about using multiple usernames from the same ISP.

Pain patients, pull together & just pretend this dickhead doesn't exist. He doesn't warrant our time not affections.

Need I say once again that it's in the blua user agreement to NOT BE A CUNT!

Ha, said it again, but warranted. I'll draw attention to this thread, albeit still waiting on infractions.

Mods let's go,

Rtp

Why does everyone assume I'm a dude ?

I'm ready to rumble here, above poster/insane twit has been reported over & over, but still exists. What gives Mods?!?
 
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Greetings fellow pain managers! I am new and SO glad to see a pain management thread! My husband knows I am in pain management but nobody else because I am afraid of the stigma it seems to have where people will think you are some kind of junkie, and not understand the tremendous pain I am in.

I had spinal fusion at L5, S1 for grade 3 spondylosthesis (sp?) AND decompression left side stenosis. The surgery was the WORST pain I have ever felt in my life but I can walk without a walker finally. Second surgery was the hardware removal, I am very petite and I couldn't sit back or lie on my back because the screws were constantly irritating the muscles. Post surgery pain levels were still high 6-7 mostly but would rise to 8-9 towards the end of the day. My surgeon was only able to put my spine 32% back into place which leaves 31% or so permanent displacement. He couldn't move it any further because my nerves were going totally dead.

Long story short I have been in pain management since January 2015 and am currently on MS Contin 30 ER, 10/325 hydros and 150 mg lyrica. I also am prescribed Cymbalta. I am told I will be in pain the rest of my life, which depresses me. I like my PM doc okay, but he keeps pushing for me to get a spinal cord stimulator implanted and I am very hesitant to go through that. Does anyone here have experience with one? My meds are ALWAYS running out early because honestly they don't work very well but I have just been trying to deal with it on my own because I don't want to come across to my doc as a junkie who wants more pills for fun.

I was also researching plugging and when I get my ms contin will for sure be liquifying it and plugging and see if it works better that way because orally it does nothing.

Anyway, sorry for the long post/intro, I look forward to chatting with you all and hopefully being a support to others ♡
 
That's a tens unit directly in your back. I have an external one and it has been suggested to me to get the implant but I personally would rather use as needed then for it to automatically do it.But have heard good things about the implant.

The fusion you had is the exact same that was recommended to me and I was told recovery time is 6 months ,is that bullshit? I have a herniated L4/L5 have a torn/ruptured S1 and degenerative disc disese(I was told I have no disc in between my L5 S1 vertabrea(I can't spell) .I've been afraid to get it done cause of horror stories it could be worse pain and after reading your post I'm even more afraid , should I be? I always have pain but my good days its around a 4 but once a year I'll go down for 6-10 weeks where I'm in 10 screaming agony whether I'm sitting,laying, or standing. Using the bathroom(number 2) is excrutiating when I go down for the 6-10 weeks. Would you recommend the surgery if I'm only in moderate pain for 4/5ths of the year?
 
Welcome @Jloslow, always great to have a new voice on the pain threads!!

You've been through an awful lot & failed back surgery is a huge problem. (Directed @namnoc too). Sounds as though you HAD to have the surgery performed, whereas in many cases it's elective.

Like the two of you, my spines pretty stuffed around L4/5, S1, S2. I was informed that, in my case, surgery would be a last resort, as my pain & CNS wiring is particularly complex.

You'd trial the SCSI, before implantation. It'd be adjusted over a few days to observe your reaction & any positive changes to your pain levels.

A SCSI is a step above a tens unit, over here in OZ, in the world of PM, tens units are being used less & less, as they offer no value to most Cpp's. (Exceptions, of course @namnoc).

Why is your Dr pushing for the implant? Is it that he sincerely feels it would be helpful or is he getting kickbacks from a certain company?

Btw, running out of pills is such a common theme around BL, absolutely, definitely, unequivocally,- don't feel isolated in that.

Plugging is an option, of course, with morphine, as is being comfortable with your PM dr to speak up, openly & honestly & explore other options when something's not working for you.

He's got you on the right meds for chronic pain, but IMHO some tweaking is in order there.

Good doctors are sooo difficult to find, so I'm glad you like yours ok.

Are you doing physio now that you can walk unaided? Core strength is vital for back pain. Is hydro an option? I do it & luuurve getting that weightless feeling.

Hope everyone's getting some peace & good karma today,

Rtp
 
Jlosnow said:
Greetings fellow pain managers! I am new and SO glad to see a pain management thread! My husband knows I am in pain management but nobody else because I am afraid of the stigma it seems to have where people will think you are some kind of junkie, and not understand the tremendous pain I am in.

I had spinal fusion at L5, S1 for grade 3 spondylosthesis (sp?) AND decompression left side stenosis. The surgery was the WORST pain I have ever felt in my life but I can walk without a walker finally. Second surgery was the hardware removal, I am very petite and I couldn't sit back or lie on my back because the screws were constantly irritating the muscles. Post surgery pain levels were still high 6-7 mostly but would rise to 8-9 towards the end of the day. My surgeon was only able to put my spine 32% back into place which leaves 31% or so permanent displacement. He couldn't move it any further because my nerves were going totally dead.

Long story short I have been in pain management since January 2015 and am currently on MS Contin 30 ER, 10/325 hydros and 150 mg lyrica. I also am prescribed Cymbalta. I am told I will be in pain the rest of my life, which depresses me. I like my PM doc okay, but he keeps pushing for me to get a spinal cord stimulator implanted and I am very hesitant to go through that. Does anyone here have experience with one? My meds are ALWAYS running out early because honestly they don't work very well but I have just been trying to deal with it on my own because I don't want to come across to my doc as a junkie who wants more pills for fun.

I was also researching plugging and when I get my ms contin will for sure be liquifying it and plugging and see if it works better that way because orally it does nothing.

Anyway, sorry for the long post/intro, I look forward to chatting with you all and hopefully being a support to others ♡
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I know exactly what is wrong with you Ive had patients with similar problems but they have always found this useeful

Take 1 Asprin and 1 Iboprofen then put some ice on the pained area take a warm bath and then do some breathing exercises you should feel some potent releif
 
Welcome aboard Jlosnow!
Hey Rtp, i'm around, just been bogged down with work but I'll get some more PM's done with you when i get my lil fella to bed tonight.
 
@jebjebjeb - you have cpp's with 7-8 out of 10 chronic pain that get high levels of relief by taking aspirin & ibuprofen, cold compress and warm baths?

That's great news for your cpp's that's for sure. Well done!

Hot and cold packs coupled with rolling around on a massage ball does give me some relief from lower back pain and sciatica but does nothing for the thoracic pain which really sux. Hate to say it but if it wasn't for opiates like oxy I may have killed myself to get away from the pain.
 
@Namnoc-(couldn't get the quote thing to work lol)

It all depends what you mean by "recovery". I was back to work full time in 8 weeks when I was told it would be at least 12-13. The surgery should be a LAST resort for sure. I also have disc disease and had no disc between L5 and S1. They had to cut me open c section style and my surgeon fused from the front, sewed me up and then flipped me over for the decompression. I have a 12" scar across my lower abdomen and about the same length going up my back starting at my tailbone. For me surgery was necessary ASAP because by the time doctors diagnosed me (over a year of specialists telling me my left leg pain was in my head), I had become numb on my nether parts and started having incontinence issues. Apparently this is life threatening when that happens so I was rushed to surgery 1 week after getting diagnosed basically.

Only you know your limits with pain, if it is manageable most of the time then I would hold off on surgery unless there is evidence of instability in the spine. Do you get regular scans? I am not sure if my reply helped, feel free to ask me anything about fusion experience, more than happy to share. Thank you for the info on the spine implant, I don't want one implanted and will continue to tell my doc "no thanks" ;)

@RTP- Thanks so much for the warm welcome! Funny you mention kickbacks, all over his office are materials from the company who makes the devices and he gave me a free "informational dvd" to watch on the implant which basically sung praises to this medication free solution. I kind of think my doc doesn't like handing out lots of opiates, I had to beg for break thru meds bc the ms contin wasn't working alone.I intend to show him my pain journal this next appointment on Thursday and just tell him the current cocktail isn't working and see what he says. Tyvm again for your thoughts, its such a HUGE relief to actually talk to others openly about my pain and not feel judged! No PT atm other than swimming which I do at least 3x a week, it feels so wonderful floating in water!
 
@SKR-Thank you for the welcome! You asked/posted what I was going to say to Jeb lol. I would cry with joy if aspirin, motion and a bath did anything for my pain :)
 
Just to add a little... I have IBD and j take oxy codone prescribed for back surgeries chronic pain etc.... Ever since I took opioids my IBD went into remission.
 
SKR said:
@jebjebjeb - you have cpp's with 7-8 out of 10 chronic pain that get high levels of relief by taking aspirin & ibuprofen, cold compress and warm baths?

That's great news for your cpp's that's for sure. Well done!

Hot and cold packs coupled with rolling around on a massage ball does give me some relief from lower back pain and sciatica but does nothing for the thoracic pain which really sux. Hate to say it but if it wasn't for opiates like oxy I may have killed myself to get away from the pain.
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First part spot on but im afraid your wrong you only Think you would of killed yourself because you use oxy and when you stop they cause you pain and infact probably if you had dealt with the pain like most people you wouldn't be in pain now CRS. (classic rebound syndrome)
 
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