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MDMA Recovery (Stories & Support - 2)

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@taxflax yeah, I'm having thoughts of breaking up like everyday. I argue with her for no reason. I feel guilty. I just want to be alone lol.

As for the tests you guys are doing, please post results. If you find a cure it could save thousands of people stuck in here! amazing!
 
HPA dysregulation is possibly the best theory out there. It explains why symptoms change so much and it explains why this is reversible.

I agree that it's super interesting and I hope I will be able to get tested properly. However, how does this theory account for HPPD, bruxism, etc?
 
Adrenal fatigue is one hell of a good guess. For the one who thought about it. Im having poor circulation and joint pains. When I lift my leg when im at my desk i start having ants in my leg. It matches pretty well.
 
here's my story, I hope someone can help me a bit

I took ecstasy against my better judgement about this time last year at a party, and it seems like it's maybe caused depression or anxiety or something which has been almost debilitating. I'm hoping someone can help me shed some light on this, and before anyone says anything, yes I'm in the process of seeing a doctor about this.

The pill was untested but I've seen pill reports of what I think it was and it seems to check out. The other 3 people who took it seem to be fine.

What I'm feeling - please read
I just don't feel right after taking it and I'm having trouble narrowing down what it is. The world seems a bit 'off' and I don't feel like myself. I feel like I don't recognise my family or my home which is really upsetting. I've lost interest in things I used to love, like listening to and writing music. I feel like I have no drive to do anything, I used to always go for the best and fight to get it but now it's like I have no motivation and I don't care which is horrible. I feel hardly any emotion, just the occasional flicker of sadness or sometimes optimism. I don't get upset by things that would have got to me in the past, its like I'm numb to it, like people being rude to me. I get times I know I should be anxious, and would have in the past but it's like paradoxical because it's like 'I'm feeling anxious, I'm finally feeling SOMETHING again'' which then kills it (I'm not sure if that made sense, it's hard to explain, because the anxious feeling i 'good' it makes it go then I worry I'm fucked up). I sometimes get confused thoughts, possibly due to being mentally exhausted, but they're pretty distressing eg, today in college they described a special effect in film making and I thought 'that sounds cool, maybe I could put that in a song?'. I have like a phobia of drugs as a result now, and I am so ashamed of having done them now. I always worry 'am I doing this because I did drugs?'. I also see sort of random shapes like mild hallucinations off centre of my eyes but I think that could be stress related, I can tell they're not real so I just ignore them. My short term memory is pretty hit or miss. In a nutshell everything just feels wrong and I'm uncomfortable with just living.




I only took one pill, which I have read is very unlikely to cause any permanent damage and a lot of the stories of people having this for years have been folk who have abused it over a long period. So I'm wondering if this is depersonalisation, depression, or just anxiety and stress, or have I seriously fucked up from one night of being stupid. I've always been very anxious about my health and always jump to the absolute worst possible answer so I'm really scared right now.

Sorry for the length of the post but I think the details were important. The thing I'm hanging on to is that the brain has a great capacity for healing so I'm going to give it the best chance I can by avoiding alcohol, cigs and drugs and caffeine. It's only been a month but I'm seriously worried, I won't last if I have to live like this from now on. I see 3 months to a year being said, I hope I recover because I've learned my lesson.
 
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I agree that it's super interesting and I hope I will be able to get tested properly. However, how does this theory account for HPPD, bruxism, etc?

Hmm. For me, I recovered from MDMA and then got anxiety again randomly 4 weeks later after getting dehydrated really badly. So the theory certainly accounts for people who got the "comedown" again shortly after due to something unrelated. I also never had dp/dr and my symptoms were mostly anxiety with occasional moments of depression although it was mostly anxiety. I have head pressure + tingling + nausea+muscle tension though which are all accounted by the HPA theory. Also the fact that I almost recovered on Clomiphene which then caused more anxiety due to its estrogenic effects supports the HPA theory at least for me. Now I am like 65% recovered probably and hopefully HCG will take my to 100%. My thyroid free T3 wasn't the greatest and I was able to naturally bring it up through diet/supplements/exercise.

What exactly do you mean by HPPD anyways? Isn't that more common with LSD and very rare with MDMA? Are you sure you don't have like blurry vision or something which you are calling HPPD even though it isn't? Bruxism I have no idea never had it.

It seems like most people don't have that symptom. Do benzos help and how is Tianeptine going? I am guessing some effects have come by now?
 
5 months. Still get random nose bleeds. from my skin dried out including my nose. When i wake up my left side chest hurts. Got all the test but happens randomly. Wish there was a solution to this.
 
Hi all, been a long time reader here but this will be my first and last post. It's been a year today since my own long term comedown began, and like so many of you I ended up here on this site looking for answers. I can't even begin to describe how many sleepless nights I spent scouring every forum I could find, every thread on this site, looking for answers, looking for hopeful stories... and knowing how much those stories that I found helped me in the absolute darkest days, I promised that I'd come back to post my own.

I took 120mg (tested). It was my first time, and I was also drinking. Had an amazing night… one of the best of my life, actually… but woke up the next day with crushing symptoms, of which I know that you're all familiar, so I won't spend too much time on them.

Depression -- I'm not talking about "Tuesday blues", I'm talking soul-crushing, can't get out of bed, melting through the floor, wouldn't have cared if someone had called to tell me I'd won the lottery type of depression (and I had never even been mildly depressed before, nor have a history of any mental illnesses in my family).
DP/DR -- I really only had DR, I think, and not so much DP, but this was by far the worst symptom for me after the depression started to lessen (after the first month or so). Nothing I looked at was in focus if it was further away than about five feet from me (anything further than what I could reach out and touch). Fluorescent lights were the worst. I'd walk into a super market and was almost blind.
Lack of appetite -- couldn't even stomach the thought of food for about the first 3-4 weeks.
Sleep/energy -- I know a lot of people complain of insomnia, but I had the exact opposite… I could have slept away the entire first month and not gotten out of bed at all. Complete apathy, no energy to even take a shower or brush my teeth, it felt like this went hand-in-hand with the depression.
Brain fog -- Had absolutely zero critical thinking ability. Felt like I was trying to think through a wall. Also very scary and very frustrating.

There were of course other smaller things, like very strange body temperature fluctuations, but those listed above were the biggest and most debilitating, and took the longest to go. I know everyone's familiar with them, and the others, so I won't do the whole list. The point is that they do go away. It does get better.

I looked into every remedy or suggestion that I could find on all these threads and tried all of them (with the exception of prescription AD's). Nothing seemed to work or change anything in a significant way. The only two things that worked for me are the two things that you hear people on here talk about over and over and over and over.

1) Exercise.
2) Time.

Those are the only two things that helped me, and I found aerobic exercise to be much better than weight training or anything else like that, and after my symptoms started to lessen I would always feel better for the rest of the day after running 3-5 miles. The first month I exercised as much as I could but didn't feel any change. I'm here to tell you, though, being on the other side of it now… even if you don't feel it in the beginning, it's helping, and is the absolute best thing that you can do, even if you have to start with just walking short distances.

The DP/DR was truly one of the most scary and frustrating things that I've ever experienced, and this is a post that I found that helped me cope with it until it eventually went away, so I thought I'd share that as well, since it's quite optimistic and uplifting, and so many people in the DP/DR forums just say that that they've had it their whole lives and you're going to be just the same as them, which is not true:
http://www.medhelp.org/user_journal...umn-about-depersonalization-and-derealization

So all I really wanted to do was add another voice of support and encouragement to everyone on here who is currently suffering, and those that will undoubtedly find themselves here in the future, to say one more time that it does get better. Listen to all the stories on here. Nobody can tell you when or how long it'll take… but abstain from drugs, alcohol, cigarettes, and live as healthy as you can, and it does get better. Time and exercise. I consider myself changed from having gone through the experience, but I also now consider myself 100% healthy, which is something that seemed completely impossible or unattainable even just a few months ago.

Thanks to all those who answered my DMs toward the end of my experience. You helped me overcome the last hurdles, and I truly appreciate it. To everyone who is suffering… recovery is more than possible.

Stay strong.

Andrew
 
Hmm. For me, I recovered from MDMA and then got anxiety again randomly 4 weeks later after getting dehydrated really badly. So the theory certainly accounts for people who got the "comedown" again shortly after due to something unrelated. I also never had dp/dr and my symptoms were mostly anxiety with occasional moments of depression although it was mostly anxiety. I have head pressure + tingling + nausea+muscle tension though which are all accounted by the HPA theory. Also the fact that I almost recovered on Clomiphene which then caused more anxiety due to its estrogenic effects supports the HPA theory at least for me. Now I am like 65% recovered probably and hopefully HCG will take my to 100%. My thyroid free T3 wasn't the greatest and I was able to naturally bring it up through diet/supplements/exercise.

What exactly do you mean by HPPD anyways? Isn't that more common with LSD and very rare with MDMA? Are you sure you don't have like blurry vision or something which you are calling HPPD even though it isn't?

Yeah, that was my point. You wrote in another thread that the serotonin dysfunction theory wasn't necassary. I just wanted to point out that a range of symptoms can't be explained solely by the HPA-axis dysfunction theory. I think a big part of my suffering may be due to what you are describing though, hence why I'm going to get tested for the hormones you are suggesting. I'm happy that your symptoms all fall under the HPA category though. It may make it easier to treat.

You're right that HPPD isn't as common as other symptoms in a LTC, but it is regularly reported on here. Personally I'm experiencing (when it's bad) a fucked depth perception, hallucination of colors, mostly blue dots appearing in my vision, morphing of objects like door handles or patterns on tiles (bathroom) etc. I also have blinking in my peripheral vision. A few times when I used to wake up in a fucked up state in the middle of the night I would also have blinking spots all over my vision, and some weird blinking at the edges of objects. Like at contrast points.
The most annoying part of it though is that my brain has a hard time with patterns. When I experience a bad period with HPPD I can't even talk with people who have shirts on with certain patterns on them. It will look like how old games had shitty 3D rendering. Lines appearing and morphing. It also happens on brick roads, I have to look at a point high enough not to notice the ground when I'm walking on one.

During a general flare up of my symptoms I also have mad CEV's. Don't know under which category this is though.

Bruxism I have no idea never had it. It seems like most people don't have that symptom. Do benzos help and how is Tianeptine going? I am guessing some effects have come by now?

My bruxism isn't bad enough that I would consider using benzos for that specifically, however benzos do help all of my symptoms.

Tianeptine is working very well. It improved depression, energy, insomnia, and I notice that it's a potent anxiolytic. My anxiety recovered months before starting Tianeptine though. For a couple of weeks recently I felt close to normal. I felt so good that I was a bit reckless and drank a bottle of wine one night. I seem to be paying the price for that now, and I've had a rough week, but I've got myself to blame. The drug is really working wonders.
 
Not broscience here, i have another theory, it involves Excitotoxicology that means a dysfunction caused for a excess of glutamate and aspartate, this is not only related with AMphetaminelike drugs comedown but with a BUNCH of stress related illness, benzo withdrawal and so.

After A LOT of research i came with take out the serotonine or the and 5ht transporter density, and accept the other (and never named) stress related balance, gaba and glutamate.

This explains almost everything i could read here. From food intolerances to benzo/antridepressants bad reactions.

Is not about the excess of serotonin happened once. But maybe the excess of excitatory which could be increased, from food sources caffeine (physiology) or stress related (psychology) and some genetics (especially those involving enzymes for example glutamine descarbosilase that regulate gaba -> glutamate balance this could explain the nervous "personality" on some people).

When the balance is broken the system goes out of balance , and the HPA gets out of control. This hpa out of control can increase glutamate and then make the whole ordeal cyclic.

When Yoga, some food, and some meds help, check if they could be involved in the glutamic, glutamate and gaba system, You could be surprised about it. The winwin strategy involve to low free glutamic intake for a while, and some NDMA antagonist and some psychological practices like chillout ourselves (avoiding outside stressors, avoiding even some movies, being in the company of somebody for a while)

NMDA antagonist, theanine, magnesium, zinc....some meds like memantine or katamine but i would AVOID them as they are not specific and manageable for the body as the first.
avoid GABA agonist, benzos, valerian,chamomile....as they can reduce gaba receptors in time and cause w/d. Of course herbs are not potents as meds but anyway they can cause tiny gaba interference that could be accumulated.

take this with a grain of salt, but i'm confident with it.

if not, try some free glutamine (over 5grams) or some chinese food high on glutamate , and tell me about the side effects if any. i did, and got LOT worse . no surprise gluten, corn , dairy and wheat are high on free glutamine. and everything is full of this...but take in mind the main idea is to take them away until our CNS come back to normal and then introduce them slowly to our diets after recovery.

good luck everyone!
 
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Hi everyone,

Today is exactly a year since my LTC started. I have been thinking with curiosity about the deep and dark place I was in a year ago, compared to the state i'm in now. As i type this I feel completely calm, focused, in control and at peace. This time last year I was writing a panicked essay on this forum trying desperately to get any advice about what was going on in my head. I don't want to go into detail about what I took and my history with MDMA, as i have accepted and moved on from what I did. What I will say is that I was a complete mess, so bad it's hard to even put into words. I thought that my life was over. I suffered really badly from DR/Dp initially, that really stopped me from functioning properly. I couldn't read as my eyes couldn't focus on words, I couldn't think properly and I couldn't connect with my emotions. I couldn't leave the house without sunglasses as everything seemed slightly odd looking and bright and floaters peppered my vision. My night vision was completely fucked and i had to have my ceiling lights off in the evenings. I couldn't sleep for more than 2 hours. My symptoms only seemed to worsen over the next couple of months, i developed head pressure and tension headaches, tingling sensations on my scalp. I would have this sensation where it was like a tsunami was raging in my head- probably synapses/neurones misfiring or something. At night the light from streetlamps would stretch enemy vision (if that makes sense) and i had double vision with traffic lights and other small lights from where i had to strain my eyes in the dark. With the help of CBT, a good support network and keeping busy through work and exercise, I have managed to make great strides towards a full recovery.


As positive as all this sounds, truth be told is that i'm not out of the woods just yet. I don't like putting a percentage on my recovery like some do, but i'd have to say i'm two thirds of the way there. Yes, this is a year later. If that sounds alarming to some people going through a LTC, just consider that i am living life to the full at the moment, probably even more than I was before this started. I try my best not to focus on how i'm feeling and learn to live with the symptoms. The detached feeling typical of DR is improving all the time and only flares up a few times a day, rather than 24/7 like it used to. I wouldn't be surprised if it disappears completely in the next 6 months. I sleep well 9/10 times. I changed my sleep regime so i now go to bed early and get up early, which is good for my body clock. I now have no problem connecting with my emotions and am able to socialise like normal, no depression. Luckily my cognitive abilities were never hampered, so that was never a problem. I have no problem reading or anything. My night vision problems have improved, although sometimes watching tv i find it a bit too bright. I no longer have the 'tsunami' feeling in my head, which I considered an individual symptom, albeit related to head pressure. The biggest problems at present are the head pressure and tension headaches, which are more sporadic compared to a year ago, when they were constant. I hope this will disappear soon as well. Another problem is the double vision with lights, but I just use my CBT, as with my other symptoms and ask myself, "what's the worst that could happen" and "what does it stop me from doing" and then everything's ok. I haven't touched any meds or anything and things seem to be going well.

I still have days where I feel really wonky and tired, but I am experiencing more 'windows' and moments of normality. This thing certainly fluctuates. Things are going well in my life, I have a new job and a good social life. I expect i'll continue to recover, but it'll take more time. I'm ready for it.
 
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Good job my friend. I think at that moment when you realise that time will heal, your healing will improve even more. Someday I will fell 100%, and so will you.
 
So I have done ecstasy about 300 times from 2004-2011. I had never had any ill effects from it until about 2 years ago. Basically I started getting the worst social anxiety. It's so hard to describe how it is but it's almost as if everything in my vision looks different, my heart races, and I get a major panic attack. This is pretty much all the time that I'm not alone. It's extremely unmanageable. But I don't know if I can completely attribute it to x. I was shooting heroin from 2010- sept 2014. Also abusing xanax all of 2012 until I had a major seizure from withdrawing.. Someone please tell me if u feel the same way after abusing x as many times as I did. I just don't know what to think about it. Btw I have been completely sober off everything since September and the symptoms are still the same.
 
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In your situation rolling your looking at about a year of recovery . I have similar experiences although not as much I am at 25 months but I feel I am going to be better soon
 
Thanks for the reply but I gotta question how long did ur effects take to start after u stopped taking e???
 
Well mine started 2 years after my last pill. That's why I don't know what to attribute it to. Is it all the e, the heroin and xanax, or a combo of everything I just don't get it. I mean 2 years after stopping is a long time but maybe the amount of times I did it has something to do with it. Not to mention the amount of pills def 1000+
 
Highly unlikely to attribute to mdma. I would look at xanax as the culprit . Watch on YouTube some of these benzo withdrawal symptoms 1-2 years down the line that are similar to what your are describing
 
Yeah, that was my point. You wrote in another thread that the serotonin dysfunction theory wasn't necassary. I just wanted to point out that a range of symptoms can't be explained solely by the HPA-axis dysfunction theory. I think a big part of my suffering may be due to what you are describing though, hence why I'm going to get tested for the hormones you are suggesting. I'm happy that your symptoms all fall under the HPA category though. It may make it easier to treat.

You're right that HPPD isn't as common as other symptoms in a LTC, but it is regularly reported on here. Personally I'm experiencing (when it's bad) a fucked depth perception, hallucination of colors, mostly blue dots appearing in my vision, morphing of objects like door handles or patterns on tiles (bathroom) etc. I also have blinking in my peripheral vision. A few times when I used to wake up in a fucked up state in the middle of the night I would also have blinking spots all over my vision, and some weird blinking at the edges of objects. Like at contrast points.
The most annoying part of it though is that my brain has a hard time with patterns. When I experience a bad period with HPPD I can't even talk with people who have shirts on with certain patterns on them. It will look like how old games had shitty 3D rendering. Lines appearing and morphing. It also happens on brick roads, I have to look at a point high enough not to notice the ground when I'm walking on one.

During a general flare up of my symptoms I also have mad CEV's. Don't know under which category this is though.



My bruxism isn't bad enough that I would consider using benzos for that specifically, however benzos do help all of my symptoms.

Tianeptine is working very well. It improved depression, energy, insomnia, and I notice that it's a potent anxiolytic. My anxiety recovered months before starting Tianeptine though. For a couple of weeks recently I felt close to normal. I felt so good that I was a bit reckless and drank a bottle of wine one night. I seem to be paying the price for that now, and I've had a rough week, but I've got myself to blame. The drug is really working wonders.

Well thats good to hear regarding the Tianeptine. In fact, I didn't mean to "discount" the serotonin dysfunction theory--thats is very valid too and in fact, it actually ties within the HPA axis theory. After all, the first point of regulation in the HPA (I am considering both testosterone and thyroid part of it even though technically they are the HPG and HPT axes) is at the neurotransmitter level in the PVN of the hypothalamus. Its complex so I won't go into it but basically "adrenal" fatigue is not an adrenal problem directly. In fact, Tianeptine is doing just this most likely. You have been on it long enough for it to exert effects on the HPA axis. Ever wonder why ADs take like 6 weeks to kick in? Its most likely due to optimizing HPA axis function mediated by neurogenesis and probably reducing inflammation, etc in the most basic terms.

My dr told me these HPA tests are more there to confirm the problem and not to diagnose the problem. You also need to be aware that you should request your results in paper and make sure you get a fully complete panel (including a lipid panel too, low cholesterol can be a problem) preferably with PROPER vitamin/mineral testing as well. Realize that if your dr doesn't order everything, you can order blood tests from trustable online sites (eg life extension). Doctors most likely will dismiss your results as normal, even though there may be abnormalities which are not flagged by the lab since the hormone ranges are so wide. But as a young guy in your 20s-- your Total T needs to be in the 600-700 ng/dL area with a good Free T. Good morning AM cortisol is between 17-20 ug/dL and good free T3 is in the high 300s. This is based on what I have read on definitivemind and other sites.

Here is what I have learned: Recovering from this stuff is a matter of improving your physical+mental health together (mind-body connection).
 
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