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Chronic pain patients: 'War' on opioid epidemic could kill us

THE_REAL_OBLIVION

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https://www.clarionledger.com/story...war-opioid-epidemic-could-kill-us/1081785001/

Many chronic pain patients, who don't suffer from cancer or other fatal diseases, worry they will become the casualties in the battle against the opioid epidemic.

"It's like a war on chronic pain patients," said Jaqueline Schneider, a 56-year-old Pittsburgh woman who suffers from two rare spine diseases. "Nobody mentions legitimate pain patients. It's like we have the plague."

She calls what is happening now "opioid hysteria," saying the federal government's "overzealous tactics ? are creating fear in the chronic pain community."

Many doctors and pharmacists fear they may become targets and are limiting the opioids they prescribe or distribute, she said. "It's all trickling down."

She is hardly alone in those fears.

Complete coverage: The science of opioids

Dennis Ewing Sr., a 61-year-old disabled printer in San Antonio, takes the equivalent of 135 mg of morphine a day for his intense spinal pain.

The U.S. Centers for Disease Control and Prevention has recommended health care providers prescribe no more than a 90 mg morphine equivalent and justify it whenever they go beyond that amount.

If reduced to that limit, "I wouldn't be functional at all," Ewing said, adding that he fears he might commit suicide in that case. "It scares the hell out of me."

He has already changed pain doctors because the previous one took away his longtime prescription for muscle relaxers, which are the only way he can sleep, he said.

He knows he is physically dependent on opioids and would encounter withdrawal if he went off the drug, "but I'm not an addict," he said. "I've been fighting this pain since the 1990s."

He said he's been in eight car wrecks, mostly people running into him, and he said his wife has been in almost as many. She, too, must take painkillers, he said.

"We've been in multiple collisions where people have driven into us," he said. "There's something wrong with every level of my spine."

He used to spend hours a day in his wood shop, but now if he spends 30 minutes a week, "I've accomplished something," he said. "All these things have been taken away by pain. Medication gives us something, rather than just sitting in the corner and crying."

The Opioid Crisis in America: 'Susan's Brain' is part of the free online course from Harvard University

He believes the answer to the opioid epidemic and other drug woes in the nation are simple ? legalize all drugs, tax them and use the monies to fund drug treatment.

"I'm about as conservative as you can get," he said. "Treatment is the answer, not incarceration."

Donna Corley, director of the Arachnoiditis Society for Awareness and Prevention, said there are no quick fixes for the opioid epidemic.

She noted that painkiller prescriptions have been declining since 2015, but deaths are increasing, mostly because of illicit heroin and fentanyl.

Those who become addicted to opioids should have a program that offers them safer medications to kick the habit, she said. "My experience in working with addicts is they will not choose rehab unless they are ready to quit."

Physicians should test patients' hormones, vitamin and similar levels, she said. "If you are not treating the whole body, it doesn't do much good."

Schneider discounted talk of how addictive opioids are. "They say, 'You take one opioid, and you're addicted,'" she said. "That's really not true because I'm a perfect example. Opioids have given me a sliver of quality of life."

She said of the 1,110 people on two Facebook support groups involving this spine diseases, arachnoiditis and Tarlov cysts, she doesn't know of any who have overdosed.

Fatal overdoses on prescription opioids were five times higher in 2016 than in 1999, according to the CDC. During that time, more than 200,000 Americans have died from prescription opioid overdoses.

Judge: Stop the legal fights and curb the opioid epidemic

Schneider said most overdose deaths these days are due to illicit fentanyl and heroin. More than 20,000 Americans overdosed on fentanyl and related drugs in 2016, and more than 15,000 overdosed on heroin.

Of the more than 42,000 Americans who fatally overdosed on opioids in 2016, 40 percent of those overdoses came at the hands of prescription opioids.

As for those numbers, Schneider said many opioid abusers mix other medications and sometimes add alcohol.

Last year, more than 250 cities, counties and states filed lawsuits against opioid makers, promoters and distributors.

If those lawsuits settle, some of the money should go into pain research and aiding chronic pain patients, Schneider said.

She called addiction "a choice. I have a disease. I don't have a choice. You have a choice to be cured. I don't. I will never have a day without disease in my life."

Dr. Anna Lembke, chief of addiction medicine at Stanford University Medical Center, said addiction affects about 16 percent of Americans.
Dr. Anna Lembke is chief of addiction medicine at Stanford

Dr. Anna Lembke is chief of addiction medicine at Stanford University Medical Center. (Photo: Courtesy of Dr. Anna Lembke)

Despite campaigns, addiction remains "a marginalized and stigmatized behavior," she said. "Some people still believe that people who die from addiction deserve the bad things that happen to them. But nobody who uses substances starts out planning to get addicted. It can happen to anyone.

"Until we start treating addiction like a disease and build a robust infrastructure within medicine to treat it, we will not get a handle on this opioid epidemic."

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My 2 cents : That's goddamn right. If Trump cared about the junkies dying from "fentoin" he would get troops out of Afghanistan and not help the regular afghans who are farming poppies and hemp (mostly for hash...but it's been a long time I've been dealt some "Afghan", like way back in the mid-late 90's). Afghanistan invasion plans were already being worked on by Clinton in his last 3-4 months, he just passed his heroin and $ and proximity to China and Russia outpost plan to the follower, who was supposed to be Gore...but nevermind that, I'm not sure the parallel universe where Gore's win wasn't decided to be a loss by the 9 in robes is that better off.

At least the whole fentoin thing is mostly a US thing, you'd be hard-pressed to find Heroin in most of Canada, Hell's Angels won't allow its distribution in QC for example, so apparently when there's H here, which there is, but I've only seen it twice and both times it was similar to a 1/4 of hash (guy had a big ball), it the brown stuff you can't IV without additional prep, the people were smoking it. I didn't partake as I had been given a compound pharmacy Oxymorphone 40mg pill, yeah, it's not marketed here, you can only get it from a compound pharmacy and with a very nice doctor. I was already feelin' fine from crushing the thing, they can't make them uncrushable at a compound pharmacy for sure. H is a Vancouver thing, and the southern ontario cement jungle, otherwise, it's not at issue. People here shoot Dilaudid and HydromorphContins, Morphine....and not many are bright enough (or even know) about Sterifilts which they give in boxes of 100 at exchanges.
 
At least the whole fentoin thing is mostly a US thing, you'd be hard-pressed to find Heroin in most of Canada, Hell's Angels won't allow its distribution in QC for example, so apparently when there's H here, which there is, but I've only seen it twice and both times it was similar to a 1/4 of hash (guy had a big ball), it the brown stuff you can't IV without additional prep, the people were smoking it.

I don't know about the rest of Quebec, but heroin in Montreal is fairly popular and accessible, and it's a tan #4 powder like on the U.S. East Coast. Thankfully it doesn't seem like it's adulterated to the extent that it is in B.C. and Alberta, as people here are not dying in droves.
 
She called addiction "a choice. I have a disease. I don't have a choice. You have a choice to be cured. I don't. I will never have a day without disease in my life."

Lady, you sound like you're spewing simplistic, cherry-picked anecdotes dragged through an impromptu game of 'Telephone'. You're not only not helping your case here, you may actually be undermining it. And given how you seem so eager to continue scapegoating a minority group of individuals whose "addiction" is a topic you're likely misinformed regarding, it'd probably be more productive not to say anything.

A staggering number of Americans continue to appear to be incapable of empathy towards others. If they haven't personally experienced "it" beforehand, it's as if "it" doesn't compute as a valid entry. This Lady is no exception. Whatever the case, good luck with any meaningful progress while having to put up with this burden.
 
Just because a disease has a cure doesn’t mean you have free will. No one does.

Determinism might become obvious while using and maybe you can fool yourself into believing in free will when you’re sober but you’re not.
 
It is really absurd that heroin addicts can get methadone without any barriers to avoid thier withdrawal pains..but anyone with pain due to a disease is treated worse than a heroin addict and left to kill themselves and relieve zero opioids.

...it makes the decision to become a heroin addict appealing if you are in pain.
 
It is really absurd that heroin addicts can get methadone without any barriers to avoid thier withdrawal pains..but anyone with pain due to a disease is treated worse than a heroin addict and left to kill themselves and relieve zero opioids.

...it makes the decision to become a heroin addict appealing if you are in pain.

Lots of people at my methadone clinic where secretly there for pain control. Yes they lied to get in but all the clinic counselor knew the score and where supportive. It is way more expensive then going to a doc and using insurance though
 
I was there for that reason. My specialist maxilofacial surgeon dentist, the only one in town, retired. Regular dentists cannot help you with more than a few scripts to help out, they can't help with chronic pain even caused by dentistry or dentistry-related pain issues like I have (on top of neurological pain at the same area of my damn head).So they took me in because I had no more good veins to shoot up Dilaudid or HydromorphContins turned to powder during that 6 months where Oxy (which I just ate and 20mg or the 30mg ones were enough for me). 7 years later, I'm back on a legal generic Oxycodone-CR 60mg every 12 hours script, wasn't forced to have OxyNeos (our OP's), I said the OxyNeos are too expensive, especially when it comes down to 60x60mg a day and the pain doctor was aware that pain patients found OxyNeos much less efficient and that some fell into withdrawal when having the switch done from CDN Oxycontins to OxyNeos at the same dose. I'm lucky that my own status (I have college papers that says I'm good at stuff) and not somebody without even a secondary school diploma, I'm not sure I'd be taken seriously if that was my case when discussing with them.

As for H in Montreal...well, my experience was from when I lived there mid '00s to 2010, Fentoin reports are old and there's some posts here about it since 2004 I found randomly. Likely because I stayed within my college and university crowd that I didn't see white powder #4. But somebody here on BL once described that H in Montreal is like LSD in Montreal, when it's there it's everywhere then it disappears for months on end.

Damn straight. Where does society get off treating people in pain like this? :|

Why don't Hells Angels like heroin? Are they all meth heads? :?

They even fought meth and amp pills a lot that was coming in regular powder from independent labs across the province because it ate through their cocaine profits, last time I read about the 6th family (Rizzutos) and the Hell's Angels in local publications (magazines, newspapers). Now they embraced its production and yeah those who talk tough shit and say they know hell's, they're huge methbomb addicts and also love PCP and will prevent the sale of uncut PCP to people who do not turn it into "mess" to regular people, like, they control who can have this and that.

Man all this reminds me of the early 2000's when weed dealers who didn't sell the bikers weed were scared because they didn't sell "legal" weed. The SQ went hard on them when people under 18 started to end up in the ER for selling dank that was grown by independents, their shit mids didn't compete and was too expensive. So the SQ jailed many in 2 huge operations in spring 2001...then prices dwindled and weed was always high quality no matter who had it and nobody was getting death threats for selling "illegal" weed.
 
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WAR ON DRUGS!!!....hang on.....don't these things begin life as pretty plants??....i'm not a religious nut but i do believe it is stated in the bible something like 'i give you the herbs to use as you do shall see fit'.......this seems to translate into....no...don't grow those plants or we'll lock you up....if we cough we have a linctus....when we're hungry we have food....way too much at times if you ask me....people can easily stuff themselves silly with food and become obese there-by obtaining some life threatening and debilitating illness.....but we must not have opium or coca plants or cannabis plants....if it was found that table salt made your mood lift if it were mixed just so with white pepper that would be the end of salt....i don't understand why.....the human race are all treated as a bunch of total nutjobs...admittedly some are....but i've seen alchoholics act dispicably and yet they are socially accepted even though they drink a 'drug'.....when you make these substances illegal you create a criminal underworld....you create crime and criminals....you create addicts and desperation......people should be able to grow what they like and suffer the consequences of their own actions....you create business....a better economy....and no more desperate addicts but people who choose a substance of choice and use it in moderation because it is ok to do so....tell someone they can't do something....what is the natural response....just a thought..
 
"Crisis"? Fu** These Corrupt SOBs!

I don't think they are going to actually do anything about this "crisis". It (IMO) is just hype to make people stockpile (spend more $). Don't wanna give a whole lot of "opinions" on this so check it out:

"This is an industry that allowed millions and millions of drugs to go into bad pharmacies and doctors' offices, that distributed them out to people who had no legitimate need for those drugs."
 
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