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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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So Im in chronic pain with fibromyalgia and dihydrocodeine is being taken off the market here in Ireland, im sick of dealing with this pain all the time, any alternatives that I could ask my gp for without coming across as a junkie? Im in desperate pain here and I have 2 little boys to look after and i feel worthless as a mother. Any help is appreciated.
 
Hey Oreo and Rachella...Welcome and Welcome Back to the club nobody wants to join. Chronic pain requires we pay our dues, one way or another. I wish I had answers for either of you, but I don't. Others will come along with suggestions/thoughts, I'm sure. It's slow here, with the holidays. I don't know what DXM is...I'll have to google it.

All I can offer you is a cyber hug ((())) and say to you that I truly relate to your struggles. I've heard of Fibromyalgia, but am not well-read on the case. The hip/leg pain sounds like possibly sciatica. It is one of my constant companions amongst many other maladies.

I can suggest various modalities as an adjunct to your med therapies, though I'm certain you've tried those. Distraction from the pain and sadness is paramount. You are not worthless as a mother. Those 2 little chaps are your MOTIVATION. Take them out for a walk...or sit in the park and watch them play. Rent a fun movie, pop some corn and lose yourself in giggly laughter with the kids.

I swim daily, as the motion is easier on my arthritic limbs. Screaming hot showers while I'm stretching also help. I use a TENS unit and live with a heating pad attached to my body. Others find ice therapy relieving, but the cold makes me wig out. Anti-inflammatories are helpful, but don't take on empty stomach.

I think the most important thing is to stay in motion as much as possible. I know the pain can couch-lock, but you have to use mind over matter.

We understand. We care.
 
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So Im in chronic pain with fibromyalgia and dihydrocodeine is being taken off the market here in Ireland, im sick of dealing with this pain all the time, any alternatives that I could ask my gp for without coming across as a junkie? Im in desperate pain here and I have 2 little boys to look after and i feel worthless as a mother. Any help is appreciated.

Hi Rache,

Feel free to PM me about chatting with your Dr regarding discussing your options with respect to your painful condition. Also, would you mind telling me about your medical history regarding your diagnosis, how the pain started and resulted in the fibro diagnosis? I would love to know. I've had Dr's mention fibromyalgia when assessing me but I think it's a diagnosis for those with painful conditions that are unable to be explained any other way - in short, the condition itself doesn't appear to be well accepted, certainly not by various Dr's I have seen in this country. Any info you can share will be well received by all in this supportive thread, take care.

Closeau my man, how are you chief? Bearing up under the considerable strain like the rest of us? I hope your "dirty" UA doesn't bring any heat to you, especially over benign Mary Jane my mistress. I've smoked cannabis for more than half my life (20 years), and I used to think it helped my pain but unfortunately it actually exacerbates my pain in all its forms - nerve, musculoskeletal etc.....its by far the best medicine when I'm sick with a cold but flares up my pain. It does allow my mind to wander, thus taking my mind off pain or illness but to be perfectly honest it does make my pain worse. But others say otherwise which is great! I'd certainly prefer to be addicted to weed than oxycodone.

Dixi - so how has "opiate day" been? Has it been helpful so therefore something to look forward to or have the side effects been not worth the relief?

Hugs n drugs pain pals (Good to see you around Miss Annabanana!!)
 
Hey Hey SKR...I've been taking small amounts of Oxycodone and Neurontin in ho-ho-hopes of faking it til I feel it. Like I said in earlier posts, I think I did okay. I have suffered the consequences of blocked bowels, but I'm convinced that effect is as much this wicked disease as it is the meds.

How about you? Did you and your family make some sweet memories?

No doubt, my brotha...the initial feels of Oxycodone make me think that I'm cured and happy...for about an hour or two. Then I'm pissed and evil. I'm a copperhead (both hair and temperament) so I don't need more aggression than I already have. Steve brought home another quart of apple pie moonshine (home distilled by a mystery artisan). We've had a few nips here and there, keeping spirits bright ya know. Fa-la-la-laughter, even booze-induced in moderation, is good for the soul.

Last night the weather finally cooled down to the 50s, so he built a fire this afternoon. We're sitting by the fire and the tree with our Dal (Toddy) listening to James Taylor's Christmas CD. TMI, it's not my chestnuts, but my hemorrhoids that feel like they're on an open fire. 8o

We don't "buy" into the commercialization of the holidays, pun intended. I think the wonder of Santa is for the little ones of course. Steve and I "adopt" an angel tree family to provide food and gifts for. We enjoy giving (not only resources, but time) to those who are lonely, striving just to be significant in their twilight y
ears. Spending time with the elderly reinforces what my logical self knows...THIS IS AS GOOD as it gets, so live in the moment.

On a lighter note, we've rented a couple of movies from Redbox tonight. Just imagine a CYBER GATHERING of the Pain Peeps/Pals on BL. We've got plenty of room and could use the company! Y'all are invited to join us by the fireplace. Come in, find a comfy place to sit or lie down, stretch out. Help yourself to the food and drink. We have hotdogs to roast, or some pulled pork for BBQ sandwiches, chips 'n dip, bourbon pickles, sausage balls (hot of course) s'mores for dessert.

For those who wish to imbibe, we have Moscato or moonshine. For those who don't, we've plenty of iced tea, coffee and hot chocolate. The brew of potpourri is simmering on the stove top, with oranges, apples, cinnamon and cloves...smells of Christmas.

You're welcome to sleep over, as we call that "camp out". Steve and I often "camp out" in the den by the fireplace in the winter. Our Dalmatian(s) always loved it, because they got to sleep with us on the floor. Sadly, Hotty died in July. Toddy is just a great big beautiful velvet doll of a Dalmatian. She's a snuggle bunny, too...loves to cuddle. She never meets a stranger, like her mom...Y'all are friends I just haven't yet met. We'll leave the light on for y'all.

AnnaB...I'm counting on you to bring your special brownies...We'll all want s'more of those!!! ;)
 
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SKR im doing fine and thanks for asking. Having to scamble to find a place to live which is hard with no car and little money. Ill have a car mid Jan and need to be out by Feb 1st. Its stressful. My cannabis use is low due to urine tests so i dont smoke much but if i wasnt on pain contract i would everyday. I know what youre saying it does kinda make chronic pain worse but with me i get so chill i hardly feel my pain. Idk. Right now the dilaudid and uped ms contin works real good. I was even able to help lift some stuff today in a dump run me and my friend made. I see my annual visit with head Dr of pain clinic the 12th. Hes a pain secislist and a shrink. Hes really nice and very shrinky. So, well see. I got more money going out than coming in. I was gonna start working part time but no car thru me off. I could have a car if my aunt was cool but shes not and its my moms car and shes executer of estate and car is only thing mom owned so she wont let me have it cause tags are bad. Uugh. Just need the duplicate title and its mine. Sorry to vent but im just really stressed and we all know what anxiety can do to pain. Anyway, hope everybody is well and Dixi, check your inbox. Goodnight
 
Yes Dixi, I can function and get stuff done on light doses of thc :) Fent didnt work 4 u? I wonder what that drug is like.
 
Fentenyl is a dangerous drug, IMO.
I abused it once when young, and had to be brought back w/ EMT's injecting Narcan and chest compression. I was being stupid, but...Fent does not give me the warm fuzzyz that other opiates do, and it is very difficult to tell when it is working, if abused.
~Fast forward 10+ yrs w/out Fent. (scared me straight) to being a chronic pain patient.
Large doses of morphine were not working, moved to OC 60mg 3x a day. My script got stolen at a hotel, my Doc. had to switch me to Fent patches, 75mcg. I believe. They give me a weird, antiseptic feeling and taste in my mouth. They do cut pain, but different from most opiates. I have severe back pain...The Fent. seemed like it would be more effective on a severe burn, or laceration.
One day I was sitting in the recliner on a heating pad, wearing a 75 or 100 mic patch. My wife kept smelling something burning, couldn't pinpoint it, weird smell. Turned out the heating pad malfunctioned, and started to burn, so did my skin on the low back. The pad was chard brown, and the recliner was charring too, almost burnt down the house, really.I had large clear-puss blisters when I got up and inspected myself.
That would never have happened on Oxy, methadone, morphine, etc.. I feel like Fent. is great opiate for surgeries, and does work well w/ some folks, but for most people it is dangerous, and does not provide adiquite pain relief, as my low back was still in agony, though I did not feel the 2nd degree burns happening.

Now, if you're still thinking of requesting a Fent. script, there is another enormous pitfall--- Fentenyl will make your opiate tolerance skyrocket. After switching back to OC, I was in full blown withdrawal for over 2 weeks. That was w/ a script of 60mg OC 3x a day, and 20mg Hydrocodone 3x a day. Agony.

IMHO, Fentenyl should be reserved for during and immediate post surgeries. NOT long term chronic pain.
 
Thanks, CfZ...I need to learn more about the green product, obviously. I've wanted to for quite some time, but don't have access to specific kinds. SN...I'm very interested in learning more about making the product edible. I've purchased a large container of coconut oil.

My husband is ALL FOR IT. As I've said before, he'd literally do whatever he had to, in order to help my pain. He got the weed for me. We went to a "sex shop" (back door bong glass art) when I was released from the hospital. (funny story) we bought a device we thought I could use to smoke it. I'm a dumb ass, with no clue of how to breathe in for the effects. My husband even laughed at me, because he had smoked it back in college and for years while he played professionally in a band. When I finally got the "inhale" semi-correct, I got totally giggly and silly. My husband said it was the first time he'd seen me "happy" and carefree in forever.

I've carried SO MUCH responsibility on my shoulders for SO VERY long, investing too much of myself in taking care of my extended family. I just told my husband that I was about to take Toddy down to the nursing home to visit with my mom. (not because I want to) He said, "Baby stay here and relax and let me take care of you. You're mom is being taken care of. She'll only break your heart (and your jaw) if you get close enough. Plus, you know she can be verbally abusive to Toddy, our Dal".

:eek: Hm-m-m, you know your mom's a bitch when she terrorizes your deaf Dalmatian.

OT, I know but it's all part of the proverbial web of life...My therapist told me in 1992 that my mom is a text book sociopath, capable of killing me if I crossed her. He told me to cut my ties, as she was poison. He said my siblings were textbook "takers" who would bleed me dry and never reciprocate. He was SO right about it all, but I could not face that truth. I knew my entire life had been a living hell of not only verbal abuse, but beatings that drew blood. I was a grown woman, married to the love of my life. I had put myself through Ole Miss and established myself as an intern to a renowned architect. I am by nature, an over achiever. That was a seed planted in childhood when even "E" for excellent grades in elementary school was punishable by belt whippings. I knew then I could never do enough, be enough or give enough for my mom.

Yet, I was never successful with cutting ties. I left my parents house after an argument with Mom in 1996. I didn't return until my dad's funeral in 2001. My mom threatened me if I showed my face, so my pastor and several deacons escorted me and my husband. Sad, huh? Even more sad were the bruises the doctor found on my dad's body prior to his death. She had beaten him with her shoe and the remote control. None of my siblings had protected him in my absence. Their fear allowed her to abuse him at will.

Wow, sorry I went way off in the ditch. I just have some deep shit emotionally that erupts especially during holidays. I try to keep it all locked up, but Pandora's Box comes screaming OPEN. I shouldn't open my veins here. I apologize, folks.

Back on track now...CfZ, you don't want to "try" Fentanyl...believe me. Back in 2005-06, my Grand Cherokee was totaled with me in it. I was put on Fent patches with Actiq lollipops for breakthrough. Initially, I thought "F-U-U-K...I'm cured!" Nah...The patch didn't last the 72 hours. I was in the floor dry heaving by the end of day 2. Fast forward to 2015, my PM tried Fent patches again (the matrix style, no gel). My body did not absorb correctly. I would sweat profusely through the night, so the medicine was "dumping"...leaving me comatose during the day. My doctor had me on 48 hour dosing. I gave it 6 weeks, but weaned myself off and told my PM I was done with it.

As SN said, it's the top step on a tall ladder. Don't go there for CP until you've nowhere else to go. IMO the abuse proof attempts ruined the delivery of the pain relieving properties for folks like me. I have a wealth of issues that inhibit absorption rates, as well as metabolism.

Sorry I've babbled on about my psychosis...the gift that keeps on giving!
 
Hey Dixi, your inbox is full. Thought id et you know. Fentanyl patches made me dry heave daily.
 
Oh crap! Thanks for the heads up, closeau. I'll clear some space. Try again, okay? You have my email addy too, right?
 
Between closeau dry heaving and Dixi "making room", I feel like I should be evacuating something lol.

Well I'm stuck with a 240mg minimum oxy habit, more pain than ever, I'd rather be on bupe to manage my habit and save all the money I spend on someone else's script to supplement my own script. The only reason I haven't done it is that I'm worried that I'll never be allowed another painkiller cos I've been labelled or discriminated as a junkie by the medical practitioners. I know I'm going to need pain relief as I get older, if it's not back pain it'll be the cancer they tell me my MGUS condition will turn into (myeloma) - that shit will hurt.

Fuck it, I'm at my GP's mid next week to pick up a box of 30's (oxy) - I wish they would flavour them like candy so I could at least get some enjoyment out of them....might start a conversation about bupe. What do you do when 300mgs of oxy per day no longer touches your pain but your Dr will only prescribe 60mgs per day cos the Pain mis-management team are telling them not to increase? They are going to be pissed when they find out I got my script doubled from 30mgs daily to 60mgs simply by sacking my previous GP and going to the same clinic that my mate gets his script from, that I fucking buy anyway!!!!

Gosh reading everything I just typed has made me see how all over place I am. Putting some bad sentences together, thanks for the opportunity to rant to the choir! Hope you are all doing better than me. Shroomy probably manages his pain the best by using Heroin, be thankful (for now) that you can score the stuff. I'm not really connected these days for user amounts, if I want it I have to buy ounces, pounds and kilos - a life I left behind and yet here I am with drugs being the centre of my universe, and we all know what happens next if SKR buys a brick of smack - OD and the ruin of my son and wife's lives and their reputation by association.

I cant believe how closely I am considering Heroin - I think I'm going to crash pretty badly soon cos my thinking is beyond my control. And I'm still going ffs SKR post the reply you douche and leave these poor folks alone....ciao.
 
DixiChik- I'm so sorry to hear about the toxic relationship with your mom. That's just awful. I've no complaints about my own mom (except that she passed this year from chemo complications and I miss her terribly) but I've read many memoirs from people whose parents were sociopathic/mentally disordered/ schizophrenic and the horrific things I read could scar someone for life, never mind experiencing it.
Hopefully your dad was in your corner when you were a child, though I known many times, the "other" spouse tends to just get out of the way, so as not to fan the flames.
If you feel it still effecting you , and how could it not?... You could try speaking to someone about it. If you don't have benefits, many places work on a sliding scale so payment may be minimal and priceless for the peace of mind.. And enough "forgiveness " just so it won't clutter your thoughts anymore. That old coot isn't worth a second of your thoughts.
I had a ...unconventional relationship w my father in childhood, we were never close. Nothing like what you went through, but he was still an angry controlling guy and walking on eggshells (and waging my mom do so as well) was not my idea of a good time. I left home the minute I was able and never looked back , and told myself I would NEVER be with the kind of a man who is so emotionally unpredictable. F that. I'd rather be alone!!
It's nice to hear on the fent tips. I've never been on fent personally (seems reserved here for cancer and end of life folks who can't keep anything down. Maybe just as well, from the sounds of it.
I like having my pain relieved , but I have two kids, I don't want to be asleep 20 hours a day!

Hope everyone is doing well. As for me, I'm missing my mom (quiet times during the holidays seem to do that) and on day 5 of a med break (major flare that required more, at the expense of this week.. You all know how that goes). Was nonnegotiable at any rate, I had cankles like grapefruit and couldn't walk.
 
^I can relate to the cankles. I got my first pair of cankles last weekend when I nodded out sitting in a chair under my front patio. I've never had swelling like that. Clearly my circulation is shit and my neck and back are destroyed from sleeping in a bloody chair, I'm an idiot.
 
So Im in chronic pain with fibromyalgia and dihydrocodeine is being taken off the market here in Ireland, im sick of dealing with this pain all the time, any alternatives that I could ask my gp for without coming across as a junkie? Im in desperate pain here and I have 2 little boys to look after and i feel worthless as a mother. Any help is appreciated.

Who really cares if you Come across as a junkie!! mother!!

Just state your facts & that you need pain relief!!

I'm getting tired of the fact us pain patients treat drs as gods. And that we have to bow down to them!!

Remember, we are paying them for a service.. They're on our payroll!

Hope that helps give you some confidence,

Rtp xx
 
Lost my post! :X Was pain predominantly on the left quadrant (belly into back)? My gallbladder was taken out during surgery in 1993-4. I have every symptom stated in your first sentence.

"Profiling" is spot on, I think, even in my case. As I said, they see the franken-scar on my tummy and BLAME EVERYTHING on the disease causing adhesions. They blow me off without even blinking, or refer me to a GI who blows me off.

My gut is in a mess. Something is horribly wrong, aside from or due to pre-existing Endometriosis.

FWIW...I'm old school with my references, but I LOVE long dreads on guys if they're smooth and well-kept. I had a crazy crush on the MilliVanilli (sic) island-looking green-eyed guy. He's since died of OD. smfh
Hi Dixie I hope ur well today!
I was just catching up on the pm thread and saw this post and was just wondering if the drs have ever tested you when your pain is bad for chronic pancreatitis? Your symptoms seem very much like pancreatitis to me. Pain in the left quadrant radiating to the back, nausea etc. It took them awhile to figure out that's what was wrong with me and at first they wanted to take my gallbladder out too. Well I was just curious, I hope your feeling ok and I hope the New Years brings you much better relief than 2015!
Geez it's 2016 tomorrow, that's just insane to think about lol...
 
animated-party-frog-with-noisemaker-sync-2.gif


HAPPY NEW YEAR to my pain peeps!

FFS, I hate when this shit happens! I typed a long post, responding to Cliffy, Bliss, SKR and RTP.

Poof! It's gone.

All I'm left with is this toad, and even his "shaker" won't shake, shake, shake, shake, shake!

I'll try again to post later. Right now I need to go kick something!


 
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Great pic Dixi. I am so very happy the worst year of my ife is almost over. Thank God. 2016 will be great for us pain peeps. Im even thinking about changing up some things. Got a place to ive last night so lots of change but i need change. Its all goid. Everybody have a safe night and happy new year!!
 
Shoot me an email or PM, whatever works for you. Did you get my email? Tell me about what happened with your mom's house and all. I worry about cha, my brotha. Holla with the details, ok? You stay safe, too!
 
animated-party-frog-with-noisemaker-sync-2.gif


HAPPY NEW YEAR to my pain peeps!

FFS, I hate when this shit happens! I typed a long post, responding to Cliffy, Bliss, SKR and RTP.

Poof! It's gone.

All I'm left with is this toad, and even his "shaker" won't shake, shake, shake, shake, shake!

I'll try again to post later. Right now I need to go kick something!


^^ I love it lmfao!!! That gave me a good laugh for the day thank you Dixie!!!!! :)
 
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