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  • NMI Moderators: Snafu in the Void

Cpp

^ nice username lol.. took me a second to be like, "hmm somethings wrong here" ;)

-HOOD
 
Lol, it's an anthem dude..

Last night I wrote a v.long and detailed post on my lappy, & promptly fell asleep on it-, now I can't find it!! *sigh*

I'm on my third day w/out opiates, (prescribed), & doing amazingly well with Lyrica & Diaz. Pain is a bit of an issue, as are school holls, but I'm not sick.

Every few days of every month I run out. Usually I try to justify this to myself as being a busy young mum,- some days more is required of me.

My conundrum is a), that my tolerance after having chronic pain for almost ten yrs is crazy high to either kill the pain or get a buzz, & b), I'm having a LOT of "self-talk" going on as to if I am actually more functional with my meds.

Can anyone identify?

Rtp.
 
Thanks to those who said hi :)Ok, a lil more info to add...My day to day pain stems from three different types of arthritis-, I'm quite the anomaly, there doesn't seem to be any reason for me to have these diagnoses at my tender age of thirtyish. But the absolute worst part of all this is god damn awful neuropathic pain that has no trigger! It simply strikes randomly, so it's very hard to make plans, even worse, my medications don't touch it. Fairly recently, about twelve months ago, this was diagnosed as Central Sensitisation by my Rheumatologist, and my pain mgt doctor admitted me for a Ketamine infusion. He's a big believer in Ketamine as a NMDA antagonist, to calm my receptors down and "help" my usual meds work better. I've now had five infusions, at times with Lignocaine as well. I really am not convinced these infusions help that much, it usually takes about fourteen days, (and very high doses) to feel that I can manage again at home.My Pain Specialist is highly regarded both in my area and internationally, and I have consulted with him for several years. He believes our City is "cutting edge" in pain mgt, and has reluctantly agreed to speak with my G.P. re: increasing my oxycontin when he returns from holiday, as there seem to be no options left.In part, he is involved due to my "high opiate requirements", I have tried every opiate/opioid available here in Oz, and the Oxycontin and Oxycodone combo are the only meds that have ever partly relieved my pain, and allowed me to remain somewhat functional. However, I constantly need higher doses, an old story I know, so frequently I decide what to take and when. So, enough is never enough. I'm quickly tiring of this cycle, as I'm sure others can relate, and also of keeping all of this to myself. Whoever said " It's different from the outside looking in, then the inside looking out", was a very clever cookie. BTW, I'm a "Soccer Mum", and live in a nice part of town... I really can't talk about this to anyone, let alone my doctors, so I'm feeling a bit lost.Thanks for reading,Rtp.
 
Sorry that the previous post doesn't have paragraphs, I did edit it, but clearly not correctly..I wanted to add that I only recently switched from Gabapentin to Lyrica, after reading about it's effects in withdrawl on here.So far so good.Rtp.
 
I used that phrase in a different thread, I don't know if that's what you're referring to. Anyway I have chronic arthritis but it's a different type. It runs in the family and progresses. I look at my mom and realize " the best is yet to come". I get cortisone injections every 3 months. And take neurontin (gabapentin) for the neuropathic pain, it works fairly well. It helps prevent the random shocks from nowhere that have been known to fling coffee across the room. I get cortisone shots in most of my major joints to take the edge off the arthritic pain, they last for about 3 months. And then there's pain meds. Unfortunately for me I could never seem to take them as prescribed. I won't go into mess I created around that topic but presently im on subutex. They prescribe it here in the states to help people get off pain meds. They say that it . Also helps to receive pain but I kinda doubt that, at least for me. My dr. said he would start back with the good meds as long as "we don't have any issues between now and Jan. 1st. I can't just go to another Dr . They have a data base in my state and no other Dr will touch me at this time. I hope I've said something that will be of use to you
 
^Donetherebeenthat, I msgd u between posts, again, voila it's disappeared overnight!

I'm very sorry ur Arthritis is genetic as well as systemic, by the sound of ur poor mother. I pray sweet child of mine never develops such cruel & life wracking pain.

I'm glad cortisone shots work for u,- I tried them yrs ago-, no glory. I've since had several medial branch blocks, as well as SI joint injections under fluoroscopy and anasthesia to try and help some of my lower back pain.

Subutex, Bupe here, did not help me, tho I'm glad to here ur prescribed that over methadone, for me that was a scary med. (like urself, most meds I can't be trusted to take as prescribed, but that one I was never gonna stuff around with, (& I probably wasn't on it long enough to do so).

As my pain mgt dr attested before I strong armed him, "most patients feel groggy after switching from oxy to the morphone/morphine meds", I also have tried hydromorphone twice with no success- but breaking the time-release effectively, :p and had limited success with some MS Contin added into my oxy mix.

For u, it's gotta be so hard sticking it out till January!! Is the Sub doing anything? Are u on a high enough dose for pain, or is it a maintenance dose? We have strict databases here too, I've been "red flagged as a doctor shopper" twice at my usual clinic, just because my usual GP was on holiday.

Still,- today I can't believe how much the Lyrica seems to be holding the Wd's, though I'm up kinda early due to back pain.

Thanks for ur posts. It's great just to have an ally at times.

Rtp x.
 
Every few days of every month I run out. Usually I try to justify this to myself as being a busy young mum,- some days more is required of me.

My conundrum is a), that my tolerance after having chronic pain for almost ten yrs is crazy high to either kill the pain or get a buzz, & b), I'm having a LOT of "self-talk" going on as to if I am actually more functional with my meds.

Can anyone identify?

Rtp.[/QUOTE]

Believe it or not, you and I are in the same boat sister!! 10 yrs.. Changing meds every 6-12 mths.. Can't figure if I'm trying to get ahead of the pain, or chasing the dragon!!!
I'm super deduper new, so hopefully this is something we can help each other out with!!
Since becoming disabled, friends don't come around or wanna hang out, cuz I am not physically able to do 1/2 of what I used to/they still do.
You will be in my thoughts! Sending good vibes your way & crossing my fingers that an answer comes swiftly!
 
Roo,

Yes smtms I don't know if it's the pain or "chasing the dragon", but
my self administering is at times, uh, a lotta the time actually, getting into the 500mg+ range. Oral, but crushed if it's oxycontin.

Did u get my question re:weight?

I understand we can't always do what we'd like, and I often cancel plans. I have a few great friends who would go to the end of the earth for myself and sweet child of mine... But they have, and never will have any idea of the addiction side. Sorry u feel ur friends have abandoned u, but have u thought that maybe they were never true friends?

Lucky u re: no wds!! I'm pretty strung out right now, but being here helps, as does chain smoking... I'm well past 72hrs, and not too functional, but not "sick"

Write back soon,

Rtp
 
Rtp

Yes, to answer your ques, most I see in hindsight that they aren't and were never my true friends.. But it's the ones who stuck around the first 2 years when I needed help taking care of my baby, bathing, ect

Those are the ones that hurt me when they bailed. 5 yrs later, I can do a lot more movement then in the beginning, but still restricted. One blew me off cuz I couldn't walking in high heels in her wedding!! If I'm not allowed to sweep the floor, what makes you think I can prance around in heels, no matter how many pills or drinks I have in me?!?!? It's the bottom line of balance.
Had another leave me in the mall cuz my sacral joint shifted. I fell to the ground, security came. No big deal to me, I'm used to it happening and me falling. She went on a social media telling everyone I was a druggy and was so high, I fell and totally embarrassed her!!!

SMH.. Some ppl's kids. So I stick with my husband, and few family members and the awesome ladies at PTA once a month ;)
 
Roo,

Thanks for such a quick reply. You sound far more "disabled", then myself, and I'm pretty umm fucked up, but can retain my mobility due to meds.

Pls answer my question regarding pain mgt and the stingy meds ur on. I posted on ur thread. Just wondering why such a low dose for something that obviously impacts ur quality of life. For me, that wd be "no deal, seeya later doc", next.

Anyway, glad to hear u have a hubby at home. My "donor" is a deadbeat dad with a heap of kids he doesn't see or help with.

Talk soon,

Rtp
 
My hubby treats me like a queen... Whenever I need something he gets up and gets it.. If I hurt my back.. He carries me wherever I need to go in the house (couch,bed,bath, loo).. I sure lucked out!
 
Ty captain! (If that was directed to me).. Appreciate it!!

I'm glad I found this sight, not only for entertainment when ppl are being funny or Rediculous.. But also for the knowledge and knowing I am not alone in my pain & pain management battle!
 
Roo, I think we've hijacked each other's threads woman,- it's getting confusing!?! But I'd really like to hear ur next post, the detailed one..

Captain- thanks for saying hey, I've enjoyed some of ur threads in the past.

I'm not sure if I posted it in my Ketamine thread, but I'm being admitted to hospital for, uhh, ketamine on Monday. Thx for the good wishes and info, my pain mgt dr and I are taking a calculated risk, but still a risk and I go with informed consent. By blasting the NMDAs from zero to 1000mg, we will discover if these receptors still play any part of the pain game for me.. From there?? Who knows, but at least it should be very clear if my ketamine dream is overrrr.

Rtp
 
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