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Harm Reduction The Pain Management Mega Thread - for all your questions on dealing with chronic pain

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Cane2theLeft said:
^When I did physical therapy without insurance I had to pay about $800 a month while going for an hour twice a week. I have only seen pain specialists with insurance but whenever I have seen other specialists without insurance (neurologist and neurosurgeon) it cost about $500 per consult.

I don't know what you meant about being in the county's system... do you have a form of insurance through the state? If not, can you get on medicaid? You should check with your doctor about seeing a specialist and look into the aid programs. I'd just like to mention how fucked it is that we are paying triple+ per capita per year (~$8,000) what every other industrialized nation is paying for health care; 47,000,000 lack insurance; most are under-insured and people WITH insurance routinely get fucked; and finally 18,000 people die annually due to lack of health insurance.

I'm really sorry you are in this situation and insurance or not, you are going to have to fight for relief- its never handed to us but in case this is a chronic issue, you REALLY don't want to abuse your medication. You risk losing your doctor's trust and getting cut off, having to deal with addiction on top of chronic pain and overall it will just fuck things up worse.

Take care man and let me know if I can help in any way, I've been living in pain for 34 months now.
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that sucks man, its real dissapointing....i hope it doesnt become chronic pain, and i dont know if ill be able to get that ct scan, you know everything i said about the depression and whatnot, all that is just the beginning, im at the point where i need to get back on xanax, and certainly my doc will absolutely not prescribe me that, im already looking for a pyschiatrist
i dont know if i can afford any kind of pain specialist, ill just try to do my best whatever it is
thanks man, appreciate what you said, im going to stay on that nerountin for a couple weeks to see what happens, im also getting my flexeril refilled so hopefully it will help with combining the 2
 
beta1 said:
Yeah, why wouldn't we? Someone made a claim that he would be come addicted to something, not that he might become addicted. Its VERY important to differentiate between the two.
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Thanks for the back up on that, you put it better than i did.
 
toomuchpain said:
you know everything i said about the depression and whatnot, all that is just the beginning, im at the point where i need to get back on xanax, and certainly my doc will absolutely not prescribe me that, im already looking for a pyschiatrist
i dont know if i can afford any kind of pain specialist, ill just try to do my best whatever it is
thanks man, appreciate what you said, im going to stay on that nerountin for a couple weeks to see what happens, im also getting my flexeril refilled so hopefully it will help with combining the 2
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If there is a neuropathic component to your pain odds are on your side that the neurontin will help. I'm really sorry to hear about your depression and anxiety- its absolutely essential to get those treated because depression and anxiety can amplify pain exponentially. When my health got to the point where I had to leave the university I was at and leave my job, I became very depressed. Dealing with pain takes a shitload out of you- when I don't have pain medication I am exhausted and then give me a big fat sedating dose of an opioid and I have all the energy in the world because my body doesn't have to deplete all of its resources handling the pain.

Gradually I learned to live with pain and accept it as chronic (NOT that yours is! I am just relating my depression/anxiety and its impact) and so I pushed through and was determined to get back to some form of work and start taking classes again. I struggled a lot at first and that didn't help the anxiety and depression but when I started to do a little better and I regained some of my social life, the pain was so much easier to deal with and I was able to discontinue the oxycontin I was on and take smaller doses of weaker meds.

I understand how hard it is to get treatment in your situation but just do whatever you can to feel better- rely on family or friends, occupy your mind with hobbies you enjoy, exercise, do things that you consider productive... and if you need meds, see what you can do. I'm sure you can find community support groups and other forms of free therapy and take advantage of it. I would be really surprised if mitigating your mental health issues did not help lessen the impact the pain has on your life. This will also make it a lot easier to get better.

Much of physical therapy is simple things that you can find online... stretches specific to where the pain is located/radiating to, simple exercises to strengthen key muscles and buying a swiss ball (mine was ~$15) and doing gentle exercises for a couple minutes twice a day can make a world of difference. Conservative treatment (like NSAIDs, heat/ice, PT, etc.) is effective for the vast majority of people who have pain in their back. I would be more than happy to help point you in the right direction of simple, free or cheap things you can do at your place that could potentially make a huge difference.

As always, take care and feel free to ask any questions here or through PM. I really feel for you and I mean it when I say I'd like to help any way that I can.
 
Cane2theLeft said:
If there is a neuropathic component to your pain odds are on your side that the neurontin will help. I'm really sorry to hear about your depression and anxiety- its absolutely essential to get those treated because depression and anxiety can amplify pain exponentially. When my health got to the point where I had to leave the university I was at and leave my job, I became very depressed. Dealing with pain takes a shitload out of you- when I don't have pain medication I am exhausted and then give me a big fat sedating dose of an opioid and I have all the energy in the world because my body doesn't have to deplete all of its resources handling the pain.

Gradually I learned to live with pain and accept it as chronic (NOT that yours is! I am just relating my depression/anxiety and its impact) and so I pushed through and was determined to get back to some form of work and start taking classes again. I struggled a lot at first and that didn't help the anxiety and depression but when I started to do a little better and I regained some of my social life, the pain was so much easier to deal with and I was able to discontinue the oxycontin I was on and take smaller doses of weaker meds.

I understand how hard it is to get treatment in your situation but just do whatever you can to feel better- rely on family or friends, occupy your mind with hobbies you enjoy, exercise, do things that you consider productive... and if you need meds, see what you can do. I'm sure you can find community support groups and other forms of free therapy and take advantage of it. I would be really surprised if mitigating your mental health issues did not help lessen the impact the pain has on your life. This will also make it a lot easier to get better.

Much of physical therapy is simple things that you can find online... stretches specific to where the pain is located/radiating to, simple exercises to strengthen key muscles and buying a swiss ball (mine was ~$15) and doing gentle exercises for a couple minutes twice a day can make a world of difference. Conservative treatment (like NSAIDs, heat/ice, PT, etc.) is effective for the vast majority of people who have pain in their back. I would be more than happy to help point you in the right direction of simple, free or cheap things you can do at your place that could potentially make a huge difference.

As always, take care and feel free to ask any questions here or through PM. I really feel for you and I mean it when I say I'd like to help any way that I can.
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yeah, i dont really have any friends, i tend to push people away, i mean theres maybe a couple friends i have but i dont do much about it, so i definately dont rely on them, my mom told me that she is slowly dying from heart disease (this is one of the most important situation among many im dealing with right now) and i have super high blood pressure from this now, trying to deal with everything thats happening and that will happen after this, im just lost, so i know and i hope the "good ole" doctor knows that this may take affect on my physical pain.
the doctor a long time ago gave me a sheet with excersises but i lost them, i will have to go online and find some, of course using heat/ice is important
thanks for everything though man, im going to pm you
 
^toomuchpain----

Dude I hope everything starts to look up for you. Reading your posts you got to be going crazy right now. I hope that thiungs get better and your pain subsides. Keep on keeping on brother!
 
I am FINALY going to get to go to a pain clinic, 7 years after I really needed to in the first place. Since then I have just been taking norcos, but my doctor is severly underprescribing me hes had me on 4 7.5/325 norcos for 7 years he wont let me have any more and he thinks if you dont have cancer pain than norco will take care of it.
so I saw a psych I was kinda hoping shed help with my pain but she said I flat out need to go to a pain clinic and with her help im finaly going to get on disability so I will actualy be able to afford it.
can anybody tell me more about the pain clinic experience? How do they treat you, and do they usualy let you play a part in your treatment? I Cant WAIT to get some long acting drug, i dont even care which one oc, ms, opana xr i dont give a shit I just need something besides one hydro ever 4 hours its bulllshit as I need at least 4-8 at a time every 4 hours so IM hoping to be prescribed maybe an oxycontin 40 twice a day with the norcos for breakthrough pain. well see :) either way Im finaly going to get the treatment I need
peace
 
but my pych said under NO circumstances would she prescribe me any pain meds infact she wouldnt prescribe me anything at all which was a bizzare psych experience in my opinion. But flat out she said she knew nothing about pain which is bullshit she has to know something about it to be a psych and see people all day long who are in pain. She also didnt know the difference bewtween addiction, and tolerance/dependence she swore they were the same thing but I disagreed but she said nope they are the same. I was frusterated and I said welll I NEVER take more of my pills than im supposed to I just ahve been on them for like 8 years. shes like it doesnt matter its still addiction your addicted

that pissed me the fuck off so many doctors are IDIOTS!!! but shit there are some Really good ones out there, just hard to find
 
^ true that. My pain doc is also a psych. he said he got into it because he noticed that a lot of people's mental problems stemmed from that fact that they were in pain all the time.
 
ofukibenhearB4 said:
but my pych said under NO circumstances would she prescribe me any pain meds infact she wouldnt prescribe me anything at all which was a bizzare psych experience in my opinion. But flat out she said she knew nothing about pain which is bullshit she has to know something about it to be a psych and see people all day long who are in pain. She also didnt know the difference bewtween addiction, and tolerance/dependence she swore they were the same thing but I disagreed but she said nope they are the same. I was frusterated and I said welll I NEVER take more of my pills than im supposed to I just ahve been on them for like 8 years. shes like it doesnt matter its still addiction your addicted

that pissed me the fuck off so many doctors are IDIOTS!!! but shit there are some Really good ones out there, just hard to find
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dude, the docter is a psychiatrist, which means she specializes in mental or mood disorders, depression and all the other things associated with psychiatry. The fact that she doesnt know much about pain management is very common. she went to school and got her M.D for psychiatry, not an M.D in pain management or anesthesiology. The thought of a psychiatrist prescrbing narcotics for pain is rare, unless they have a previous background in that area.

But as for your ? about the pain clinc, it can be a great experience or a nightmare. My st time going it was like I didnt exist and the doctor didnt bother to get me involved in my treatment, hell he would barley even let me talk. After a couple months of that and sometimes even worse, i switched to a differant clinic which was run by 3 Dr.'s.It was and has continued to be a great experience, been going there 2 years now. They actuallywill spend time with you and not rush you in and out, they involve you and listen to what you have to say.

So it truely depends on the pain clinic and the dr.'s. Make sure you hear them out and try not to ? their suggestions that much, they hate that but make sure that they are aware that you want to have a say in your treatment.. good luck
 
RainingDownOxy said:
^toomuchpain----

Dude I hope everything starts to look up for you. Reading your posts you got to be going crazy right now. I hope that thiungs get better and your pain subsides. Keep on keeping on brother!
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hey, thanks for your post
i def am going very crazy, so many things are just bouncing around in my head, i feel like its going to explode!
but im trying to keep my head up
thanks again!
 
heat/ice cannot be emphasized enough, niether can physical therapy and rehab exercises...
these have helped me immensely in my rehabilitation, sure I am on Opana 15mg/2xday for my chronic back pain, but without the previous, and my 30 minuets of cardio a day, i can safely say I would be in a worse situation today if it wasn't for those things above...hope all goes well for you
Peace

P.S. Happy 400th post for The Pain Management Mega Thread!!! :)
 
Jonro said:
Them doctors put on that white cote and somehow it makes them automatically think they are gods.

I SWEAR some docs actually take joy in playing god with peoples lives.
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So let me get this straight .. by this comment i am to assume that you think somone should just be able to walk into a doctors office and claim they have back pain or whatever and automatically be given oxycodone , fentanyl or hydromorphone and if they arent then that must make that doctor an asshole or uncompassionate ?

If so id really like to live in the world your mind currently is...
 
^^^^^^
+1


there are way too many people in the world that are the reason for doctors to be skeptical of pain patients in need of opioid pain relief (especially younger patients such as myself), even though it has been proven time and time again (MRI's X-Ray's etc. etc.), and not too long from now I'll be moving across the country and will have to do this entire process of finding a doctor that is knowledgeable about my condition and knows how to deal with it, but im living in the present and after 8 months of bullshit dealing with doctors in the height of my chronic pain I am finally in the hands of a doctor that has been able to get a handle on my pain.....

just because a doctor wont give you "what you want" for your twisted ankle or some bullshit incident (even for something legit) that someone have blown their pain out of proportion for the sake of getting pain meds makes me sick, and certainly does not make that doctor a dick, much less a god....
 
funny thing with all this is that back in the day (when i was first diagnosed) my doctor said hey what about oxycodone? and i refused......i was so scared of being dependant for my entire life.....now that i have lived with this pain for 10 years, i wish she would script percocets....but, noooooooooooo......in that short decade she has become aware of the abusers........

.now i get tramadol and i self medicate with wine.........she doesn't know that and she doesn't need to i suppose......it just sucks that drug seekers have made it difficult for actual chronic pain patients to get proper relief......if i had only known back then, i might actually have a normal life (i.e. work full time and keep up with my peers)................
 
I don't know if anyone mentioned this but ketamine (low & high doses, coma) has saved some people with severe pain. RSD & CRPS are most common conditions treated with ketamine and people experience a life changing decrease in pain. It might be helpful with other conditions. It's not done in the US (or at least the high ketamine coma) but its done it Mexico and Germany and it costs maybe 30-40K $. I'm sure its not covered by insurance but look into it if u think it might help u.
 
^^^^^^^^^^^^^^^^^
im really sorry to hear about your situation man, it is one that is far too common.
it sounds like your not getting proper pain management at all, and if it is affecting your life so much that you can't work full time or go out with your peers then don't you think it's time for a change?

i would suggest going to another doctor and getting a second opinion, possibly a pain management clinic.....it's just something that has to be done if your first doctor isn't understanding...my psychiatrist recommended a second opinion and luckily it was to a pain doctor that knows his stuff. my life has finally been stabalized on a 15mg OpanaER twice a day, before that i was in both extremes, being prescribed too much or little to nothing at all, now i can live my life with manageable pain but feeling doped up 24/7

you have to be your own advocate man, if it is legitment pain then you shouldn't have much of a problem getting a doctor to devise a pain management plan for you...best of luck

Peace
 
+1

Like TheMatador said you have to be your own advocate, be proactive and do what is right for your pain.Meds are NOT going to do anymore more than be a mask to the pain.Adjunct therapies will actually improve your pain levels and you will feel better, of course there are conditions that throw this option out the window.

TooMuchPain, I am sorry your having such a bad time, hope your mom is doing ok, I know my post came across kinda dickish, but I do apologize and hope you get a doctor on your side.I am only helped by my SSDI and even then I am so in debt trying to find my true DX-My back issues are so complex 3 specialists cannot seem to nail it down, it pisses me off to no end.
 
i have a question about PM clinics...

i was finally referred to one, and it was a horrible experience with the doctor i saw. he basically said, all i need is a psychiatrist, and refuses to help me.

i do get depressed, but it's because i suffer so much, and cannot get any help!

i've been diagnosed twice with Fibromyalgia. i suffer every day with pain, and various other symptoms.

i think this doctor does not know much about the condition.

my question is... do you think if i requested to see a different doctor in the clinic, they would allow me to switch? or do you think it would help, beings this other doctor probably wrote some less than appealing things in my charts already?

i'm starting to lose it! it's beyond my comprehension that a person is made to suffer like i do, without any help.
 
^^^^^^^^^^^
like i said above, you have to be your own advocate and if this doctor isn't hearing you you'll have to get a second opinion if you don't want to have to keep living in this pain
 
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