THANK YOU, ###
Yep, my GI system is a train wreck of disease, surgery and chemo (stage 4 endometriosis). I, no doubt, have horrific adhesions binding my intestines. I believe I also have residual lesions of endo, even though I am 22 years post castration (ovaries, uterus, tubes). Of course, the body's natural response to internal "bleeding" is to heal itself by forming MORE adhesions.
In Fall of 2013, I desperately sought solutions through 8 specialists across 3 states to no avail. Each and every one pointed me towards pain management, saying "surgery to remove adhesions will create more adhesions". IMO, truth is that when they see the Frankenstein scar from my breast bone to my pubic bone, they run like the wind. I NEED HELP, but there is none.
I suffered a partial bowel obstruction months ago for which I had to BEG for help at our local ER. The CT scan showed massive amount of stool trapped in distended transverse colon. I have a left splenic flexure issue (much like a kink in a garden hose). This pain was acute, with distention and what felt like "rupture" in the left quadrant. They treated me with IV fluids, Toradol and liquids intake only.
After 2 GIs and upper/lower series of tests, Linzess 290 was prescribed. Mind you, I'm not taking the Oxycodone prescribed because I don't believe it relieves any pain. I'm drinking plenty of water. I've had to use softeners, laxatives, enemas for years post-surgery. It's not a pretty picture with the Linzess, as it produces explosive watery bowel movements. I fear that the obstruction will return, forcing me into emergency surgery. My greatest fear is colon resection/colostomy because it's "too late". Doctors just don't listen.
One would think that $280 per visit for PM would warrant careful consideration of my individual needs. My medical records made him ask "WHY" I
wasn't on pain meds. He insisted on Fentanyl patches on day one. I refused, but ultimately surrendered to try them @ 16 mos. in with no relief from Morphine or Oxycodone. The Fentanyl trial lasted 6 weeks before I said FFS, this isn't for me.
Again, thank you for your suggestions. I welcome any and all helpful advice.