Telling your doctor you are addicted (the perspective of a 42 y/o from UK with widespread pain from Ehlers danlos and Crohn's)

shadowhigh

Greenlighter
Joined
Jun 18, 2022
Messages
14
To anyone reading this, or coming across this post:

before you even consider going to see a doctor and confessing your addiction issues AND you have a legitimate long term diagnosis of a condition causing long term chronic pain, then think very carefully first.

Because, it's highly likely that, when you have developed a tolerance to your pain meds or the pain gets worse, your doctor will just say 'lolz drug seeker' and you're fucked.

You may be under suspicion for the rest of your life. You may find that every interaction with any doctor will be tainted.

Doctors may associate your history with addiction as a moral failing, and a party lifestyle. You may find that, if you're still on pain medication then every other year out of the out of the blue you'll experience a push to reduce or get you off painkillers entirely.

You may be told about 'research showing that opiates actually cause pain due to a paradoxical effect in the brain.

If you're on opiates, and asked about your pain levels you may end up in a catch 22 situation, whereby, stating your pain isn't under control will just lead to a doctor saying 'yeah, coz opiates don't work - so best not prescribe them to you anymore'...and, of course, if you say 'yes, my pain is under control' when it isn't, then, they'll probably just say 'great! Let's reduce them a bit.'

Once you've admitted to having an opiate addiction, despite the fact that the medical system got you hooked on the first place, and/or despite the fact that you're taking them because you're legitimately in pain, there's no going back and doctors may hone in on that for the rest of your life.

Even in situations where you're simply reporting that your condition has got worse but you AREN'T asking for painkillers, there's a good chance that even that will be viewed with suspicion, and it will just be viewed as a long term ruse to get painkillers in the future.

Basically, there is a huge risk that, for the rest of your life, doctors will be constantly suspicious and your prior report of addiction will always be the over-riding factor for any and all treatment.

Ultimately, you may find that doctors prioritising 'managing your addiction' over manging your pain - ultimately meaning that they'll be more focused on that than ensuring that you have a decent quality of life.

Asking for help is often deemed, patronisingly as 'so so brave;' framed as the 'right thing to do' and 'praiseworthy.' But, whilst addiction is supposedly for life and a 'disease' itself, then so is the the stigma associated with it, which will affect you for the rest of your life, perhaps making it worse. You're a statistic, and getting you off the evil drugs is a measure of success; improving your quality of life, secondary.

I'll caveat this by saying that, for some people in some situation, asking for help may be he lesser of two evils.

If your addiction is so severe that it has put your life at serious risk - once is enough - then get help. I do not want put someone else being out in harms way. It's your choice, and I'm just sharing my own experience of the last nearly-10 years, and as someone with medical issues resulting in pain.

But.

If you're going to ask for help from your doctor, just make sure you're making an informed choice.

I never thought it would be like this, and my honesty and decision to do the right thing has had very negative ramifications.

Ironically, the 'help' I received was so terrible (including them drug testing me and getting a false positive, which obviously made me more distrusted - and yes, they admitted they'd made a mistake)that I ended up leaving the programme and sorting it myself. Which was hellish, but had I remained under the so called treatment programme I'd have probably deliberately killed myself.

Peace out.
 
Did you try methadone for this type of pain? worked pretty good for my similar pain. Doses every 6 hours. Medical professionals are terrible at working with opiates.. almost couldn’t do worse if you tried. It’s funny too because they act like they know exactly what they are doing and that it’s generating positive results.
 
I am happy to report that in my neck of the woods (Vancouver Canada) pain management and indeed addiction management is handled with much more tact and kindness.
 
In my neck of the woods in fucking Newfoundland Canada it is horrible. You can forget about ever getting another opiate off a doctor again if they think your a addict. I once got kicked off my dilaudid by a doctor and was suggested methadone because a pharmacist ratted me oiut for buying sterile water. Thankfully this was before online med records so the bit about me possibly being a addict magically went missing somehow.

I still sometimes get shit from new doctors about even being on morphine though.
 
To anyone reading this, or coming across this post:

before you even consider going to see a doctor and confessing your addiction issues AND you have a legitimate long term diagnosis of a condition causing long term chronic pain, then think very carefully first.

Because, it's highly likely that, when you have developed a tolerance to your pain meds or the pain gets worse, your doctor will just say 'lolz drug seeker' and you're fucked.

You may be under suspicion for the rest of your life. You may find that every interaction with any doctor will be tainted.

Doctors may associate your history with addiction as a moral failing, and a party lifestyle. You may find that, if you're still on pain medication then every other year out of the out of the blue you'll experience a push to reduce or get you off painkillers entirely.

You may be told about 'research showing that opiates actually cause pain due to a paradoxical effect in the brain.

If you're on opiates, and asked about your pain levels you may end up in a catch 22 situation, whereby, stating your pain isn't under control will just lead to a doctor saying 'yeah, coz opiates don't work - so best not prescribe them to you anymore'...and, of course, if you say 'yes, my pain is under control' when it isn't, then, they'll probably just say 'great! Let's reduce them a bit.'

Once you've admitted to having an opiate addiction, despite the fact that the medical system got you hooked on the first place, and/or despite the fact that you're taking them because you're legitimately in pain, there's no going back and doctors may hone in on that for the rest of your life.

Even in situations where you're simply reporting that your condition has got worse but you AREN'T asking for painkillers, there's a good chance that even that will be viewed with suspicion, and it will just be viewed as a long term ruse to get painkillers in the future.

Basically, there is a huge risk that, for the rest of your life, doctors will be constantly suspicious and your prior report of addiction will always be the over-riding factor for any and all treatment.

Ultimately, you may find that doctors prioritising 'managing your addiction' over manging your pain - ultimately meaning that they'll be more focused on that than ensuring that you have a decent quality of life.

Asking for help is often deemed, patronisingly as 'so so brave;' framed as the 'right thing to do' and 'praiseworthy.' But, whilst addiction is supposedly for life and a 'disease' itself, then so is the the stigma associated with it, which will affect you for the rest of your life, perhaps making it worse. You're a statistic, and getting you off the evil drugs is a measure of success; improving your quality of life, secondary.

I'll caveat this by saying that, for some people in some situation, asking for help may be he lesser of two evils.

If your addiction is so severe that it has put your life at serious risk - once is enough - then get help. I do not want put someone else being out in harms way. It's your choice, and I'm just sharing my own experience of the last nearly-10 years, and as someone with medical issues resulting in pain.

But.

If you're going to ask for help from your doctor, just make sure you're making an informed choice.

I never thought it would be like this, and my honesty and decision to do the right thing has had very negative ramifications.

Ironically, the 'help' I received was so terrible (including them drug testing me and getting a false positive, which obviously made me more distrusted - and yes, they admitted they'd made a mistake)that I ended up leaving the programme and sorting it myself. Which was hellish, but had I remained under the so called treatment programme I'd have probably deliberately killed myself.

Peace out.
This was exactly the post I needed to see. I am a 38-year-old male who has suffered from crohns disease pretty severely the past 10 years or so. Also life has just been a bitch. My brother-in-law passed away five years ago .. I’ve seen my brother fall down a terrible hell hole of addiction that led to him passing away just two weeks ago.. I’ve been the father figure in both my wife’s family and mine and the worst part of all this is that my wife and I have been struggling with fertility issues for six years. Of course that is taking a backseat to everything else. At times I have felt like an addict for taking my prescribed pain medication.. but I’m so fortunate I recently found a new doctor who is understanding of my condition. He doesn’t want me taking too much (30 mg a day tops of Oxy) but he’s always checking on me making sure I’m not overdoing it and he is prompt on my refills. But I do feel I need to see a therapist to sort out some of these issues I’ve been having.. major depression has set in, and I have been taking more than 30mg some days. Just to feel better.. I also occasionally get some high quality cocaine. It does help me.. I hate adderall. My doctor even prescribed, me that, but it doesn’t help my mood/behavior. Where (good) cocaine does. Funny how our bodies are.. yea? Anyways, sorry for the rant. Life is nuts. Happy to see your post.
 
This was exactly the post I needed to see. I am a 38-year-old male who has suffered from crohns disease pretty severely the past 10 years or so. Also life has just been a bitch. My brother-in-law passed away five years ago .. I’ve seen my brother fall down a terrible hell hole of addiction that led to him passing away just two weeks ago.. I’ve been the father figure in both my wife’s family and mine and the worst part of all this is that my wife and I have been struggling with fertility issues for six years. Of course that is taking a backseat to everything else. At times I have felt like an addict for taking my prescribed pain medication.. but I’m so fortunate I recently found a new doctor who is understanding of my condition. He doesn’t want me taking too much (30 mg a day tops of Oxy) but he’s always checking on me making sure I’m not overdoing it and he is prompt on my refills. But I do feel I need to see a therapist to sort out some of these issues I’ve been having.. major depression has set in, and I have been taking more than 30mg some days. Just to feel better.. I also occasionally get some high quality cocaine. It does help me.. I hate adderall. My doctor even prescribed, me that, but it doesn’t help my mood/behavior. Where (good) cocaine does. Funny how our bodies are.. yea? Anyways, sorry for the rant. Life is nuts. Happy to see your post.
It makes me very happy that this helped in some way. If you would like to talk further, then I'd be happy to listen. Hang in there.
 
My doctor even prescribed, me that, but it doesn’t help my mood/behavior. Where (good) cocaine does. Funny how our bodies are.
Try to get on methylphenidate, it is much more similar in its action in the brain to cocaine (reuptake inhibitor) than meth or amphetamine (releasing agent).
 
Try to get on methylphenidate, it is much more similar in its action in the brain to cocaine (reuptake inhibitor) than meth or amphetamine (releasing agent).
Interesting. I was just reading about it last night.. thank you very much
 
Hi, I have HSD/suspected hEDS and chronic pain from it. I don't dislocate, but I chronically sprain my ankle, wrists (from getting out of bed), have ongoing back pain from scoliosis, and on Sunday I completely capital F Fucked my back standing up from taking a piss. So yeah. I get it. It's just embarrassing going to my GP and telling him my back is fucked and him asking why and being like 'lol I stood up from the toilet'

Now, he knows about my addiction problems and in the past for my back has prescribed me short term Oxycodone and valium as needed, but I really mainly have flares and my day to day pain is manageable with other methods (he actually recently put me onto adhesive heat packs which have been amazing) but there are some days that I cannot move out of bed and have to try not to breathe.

This last week because I'm on the Buprenorphine injection he couldn't give me endone, so he gave me some super strong anti inflammatory they use for juvenile arthritis and it's worked well, for now. The pain on Sunday and Monday was completely fucking debilitating and the only good thing that's come of it was when I asked if he could refer me for a management care plan to see an exercise physiologist, he was completely on board because I demonstrated some of my bendy joints and he was like yep you definitely have this as well cause I mentioned my slow healing and he suspects it's due to the hypermobility because of collagen.

I honestly think my recent deterioration in my joint strength has been a result of reduced engagement in physical exercise, so I'm willing to try an exercise program and strengthening that again but I expect at some point I will need to see a specialist because of this as my ankles, knees, and upper and lower back have become a problem.

One of my clients has chrons and it's been difficult seeing him go through how painful it is. I'm hoping that his recent major surgery has worked but I don't want to be too hopeful.

What non opiate medication have you found effective? Only because I cannot currently use them at all and need to start having some information about what will help me in a flare.
 
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