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Shit Outta Luck!

DixiChik

DixiChik

Bluelighter
Joined
Apr 27, 2015
Messages
972
On so many levels: ( Please forgive my crude language. )

SHIT...

Can't....without expensive script (Linzess 290) to force bowels to move.

Can't get doctors to do shit for me. NADA from Vanderbilt to UT to UMMC! They are all "specialists" in endometriosis, and should know how destructive this disease is to the bowel and bladder.

I'm afraid my colon is in jeopardy of rupture, but multiple specialists have blown me off since partial obstruction last October.

Why the cannabis forum? I saw an article where CDB/THC oil put Crohns in remission for a young man when Remicade could not. He's been told he'd need his colon removed. His mom said "HELL NO" and relocated their family to CO for cannabis meds to ease his colon inflammation.

I am desperate for answers that no one wants to give in the medical field. Specialists tell me that "This is as good as it gets. Seek Pain Management". Well, pain meds only made things worse with my GI problems.

I feel as though I'm dying a slow painful death due to the apathy of "gods in white coats".

Any serious suggestions or guidance are WELCOME.

Thanks~~DixiChik
 
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Hi Dixie,

I know you have been working hard to find a sensible solution for your GI issues. Have you had a chance yet to try a high CBD & THC product? If not, it would be worth your time at least trying a couple products.

Is it possible that you can take a short vacation to say...Colorado? If you are 21 I can legally give you high CBD w/ THC products here in Colorado if it's difficult for you to figure out yourself. A couple days time would probably be enough for you to see if it works or not. PM me if you need more info on using Cannabis products in Colorado.
 
Wolf, THANK YOU for your reply. No, I've not been able to try any of the Cannabis oils or candies/edibles.

I'm so far past 21. It's been 22 years since my last radical surgery to remove disease, followed by Lupron (basically chemo).

I've always rejected opiates/opioids long term, because I knew they would lock my bowels even more. After specialists refused to perform exploratory lap, I reluctantly signed up for pain "management" (yea, right). I'm 2 years on this hamster wheel of no relief. I want to try the medicinal marijuana, but not smoke.

Oh, how I'd love to travel to CO...and never come back. It's not practical at our age to "start over". I WISH that I could make that trip for a sample "tasting". I'm not able to, even though it could save my colon and my life.

Your knowledge is invaluable, as I don't even know where to start. I'm overwhelmed. I've lost hope.
 
:( My body, though I haven't had a uterus or ovaries in 2 decades, seems convinced that the 1st week of every month should be my period. I have all of the PMS pain (sans period) plus the added sensation of being violated with a bread knife in my vagina/rectum! (yay, me)

My bowels are not fully evacuating, but remained distended to the point of a "tearing" sensation.

I am curled up in a ball of hopeless misery.
 
Can I ask why the trip to CO wouldn't be possible? If it's due to lack of money, there are lots of funding pages like "gofundme" that are very good. I've known people get thousands on there before for help with medical things. If it's something else, sorry to waste your time.
 
I think Dixie is more concerned about having to move. She feels she is between a rock and hard place and for reasons more than just money I think.

But hell, a fund raiser might be a good for a trip or even for something like a move. That's a good idea.
 
That's a shame. Sorry to hear that. I hope she manages to get something sorted out soon. Yeah "gofundme" is good for any kind of fund raising. It's definitely worth a shot. Might be slow to start off with but it usually picks up after a couple of days.
 
Thanks, Enlight and Wolf...It's a crying fucking shame that people who are in debilitating pain don't have access to MM. Even if I could make the trip to CO and find the right MM for me, I wouldn't be allowed to transport it back to Mississippi. I'm told the product is quite expensive, too.

So, yea, between a boulder and a mountain, actually. Yet insurance will pay for big pharma scripts that further annihilate my insides.

I am pissed off every morning that I awaken again, just to push through pain and agony...rinse and repeat. I don't want to do this any more, to me or to my husband (of almost 36 years). I truly believe he would be better off without me.

Sincerest gratitude for your time and suggestions.
 
:( Up at 3:30 a.m. with abdominal/pelvic/rectal pain...again. I laid down with my husband, but slipped out of bed to the den. I didn't want to wake him. He doesn't want me up alone in pain at night.

He asks, "Baby what can I do?". My reply is always the same, "Just continue to love me through it".
 
How do you get pms without ovaries?
And here in Canada weed has always been plenty
Even before decriminalize no cop would bust you for a few grams. I only started smoking and edibles a few years ago. My carrer was drug tested and before shit hit the fan I was too body and mind consious to attempt a mind altering drug. Look at me now eh:/
It's ridiculous imo that your country would imprison a person for a natural medical herb but get people addicted to benzos and opiates so fast. Using weed lowers my benzo use. Gives me a killer appitite and helps sleep
I hope your country soon follows suit. So many illnesses can be helped with this plant and for me has little to no addiction unlike the benzo and opiates I take (currently in day 1 benzo withdrawal cause I'm fit for war but can't pick up a script 1 days day early ) Sorry:/
 
I don't fully understand, and forgive me if I missed something, but why can't you just.....ahem, obtain something, and forget about useless doctors?

Is there a really big legal concern there? I mean I know the U.S. has a variety of approach depending on state, from completely open and legal sale to decriminalization to one step above I live in Raqqa under the IS.

I've had issues with IBS (admittedly nowhere near what you have experienced) and weed has certainly helped me with it. It's kind of decriminalized where I am, or the law isn't enforced, or whatever, I don't care that much. But if you actually have a family and a life, I can see that it would be a concern.
 
Thank y'all for your replies. I'm trying to find access to CBD:THC oil. No, I'm not concerned about the illegality in my state. It's just lack of knowledge on how to ahem, obtain the correct product for my needs. I can order the CBD legally, but am told small ratio 1:1 of THC will enhance benefits and help with suicidal depression as well.

I've agonized with grueling pain for over 2 decades. I don't WANT to deal with (I agree) USELESS doctors. I consulted a surgeon on Thursday who said that removal/resection of my colon will be a last resort, as risks are too high. He wants me to see a "motility" specialist. FUCK THAT. I don't need more gastric emptying studies, colon preps, upper GI series, colonoscopies and MEDICAL BILLS to tell me I'm constipated and meds don't work! No shit, Sherlock, literally!

He also recommended daily enemas (not the little bottles) but the hospital issue 32 oz. size with warm water/hose up butt. TMI, sorry.

I was so discouraged, sick and desperate after seeing him...I had panic attacks all night w/uncontrollable crying and plans of suicide. I did not sleep for 2 nights now with cramps and liquid explosions from meds. I was afraid to go to bed and soil myself. Today I feel like I've been gutted.

Y'all PLEASE KEEP your thoughts/suggestions coming. I NEED HELP!!! :eek:
 
I have heard good stories about non-psychoactive CBD oil but it is expensive. Do you have many friends you could ask regarding contacts? My suggestion for longer term pain relief with cannabis is to eat hashish, starting with half a gram per dose and upping if necessary. For me, eating helps for about 8 hours but occasionally like to smoke every now and again in case the pain spikes for whatever reason. Oil is good for pain management too but I haven't had much experience with it due to it being rare in my area. Also, could you ask a friend or somebody you trust to obtain what you need from elsewhere?
 
As much as I think medical cannabis is sometimes recommended too often, it's an absolute godsend for certain types of pain and GI issues.

Living in the deep south, I understand why you don't want to chance it with the law and risk being charged with a felony, however. Under SB 491, possessing less than 10 grams of the plant in MO is "decriminalized." Even in decriminalized states, extracts and tinctures and edibles can land you a felony. I would try to find some decent quality cannabis flowers and vaporize some or smoke a bit until you can afford a nice vaporizer.
 
I really wish you could make a roadtrip to CO to get your cannabis oil :( Definitely worth the effort and expensive if it is going to save your colon.

You might consider chasteberry and lemon balm for your PMS issues...motherwort and raspberry leaf tea can also be useful. Check with your physician or pharmacist just in case those herbs would interfere with your medication regimen.

Sorry I never got back to you about this Dixi, my life was a little chaotic when it came up. But yes, there are preparations of opioid/naloxone medications that are used specifically in people who suffer gi issues. There is also a newly approved opioid drug for IBS, can't recall what it's called though, but I'm sure it's google-able. I think your PM doc is an eejit for not trialing you on these drugs...try to find a more qualified doctor..you're going to be spending money in medical treatment, may as well go for the best!
 
HORRIBLE FEW DAYS since surgeon consult. The bowel meds/methods are so harsh and my guts hurt SO MUCH! I had no sleep, afraid to fall asleep and soil myself. (sorry TMI) By the following day, my insides felt on fire and I was emotionally spent.

8o I'm a strong person with a high threshold for pain. I learned early in life, with a mom who would beat me until I bled...then beat me for bleeding. She still would, if she could. She's 90, living in a nursing home. I need riot gear to visit her...spawn of Satan...yet MY sole responsibility.

SORRY I went off into that ditch...I just don't know how much longer I can endure all of this. The pain was so severe and my emotions so drained, after no sleep, med-induced diarrhea, and uncontrollable crying that my husband gave me an Ativan and held me until I fell sleep (at 3:00 in the afternoon).

Enlight...Thank you. No, I have no friends who have access to CBD:THC oil for GI pain. I can access standard weed, but have no clue what I'm getting...and I do not want to smoke the stuff. I doubt I can "eat hashish". I tried Kratom, but suffered a partial obstruction.

Ergic...Thank you. Yea, it's nonsensical that folks in any state of the union can find any recreational drug they desire. Yet, a sick fucker like me can't get medical MJ. I tried smoking some Indica last Fall, but not something I can function while using. It was good for a stupid laugh, but definitely not a long term pain plan. Somehow I see CBD:THC oil for GI pain as a few drops or "dose" will allow enough relief that I can cope with the rest.

It doesn't seem like I will ever know. I would risk the legality issues, if I could obtain the oil to save my colon and allow me to "live" rather than exist. I know it's expensive, but so are these useless "legal" meds I have to take to survive. I see big pharma as the biggest dealer on the streets. Damn shame.

Nicholai...No apologies necessary. Hope things are better for you now. Are you referring to the little pink "gut guy" cartoon commercial for IBS w/D? It's for diarrhea, not constipation. There is also Movantik for OIC, but extremely expensive and my insurance will not approve.

My LIMP DICK for DOCTOR won't advocate or fight for me to get any of the expensive med approvals. He does very little for me, except "relieve" my bank balance @ $280 per 10 minute visit. Oh, he's "legit"...leads the only pain center in my rural area, under the umbrella of hospital.

BELIEVE ME, I would LOVE to have a "better" doctor. Please read OP of this thread, or my gut-wrenching (literally) saga with this disease by searching my DixiChik on BL. I've "gone for the best" across 3 states. Instead, I should have spent the money and energy to head toward CO.

I have to try this oil FIRST, to see if it even works for me. Doctors are quick to tell me I'm an enigma. I'm not. My case is complicated and requires they invest time and effort...something sorely lacking out there... :eek: shouts Hello-o-o-o-o He-l-l-o-o-o-o-o as my voice echoes in the emptiness of no hope.

My deepest gratitude for all of your responses!
 
If you end up making it to a legal state for some sampling and have any questions, feel free to hit me up.




We <3 you.
 
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