Green tea hasn't helped - when I tried it, it made things worse! I've tried many things, and things are better than they were, so I trust what I'm doing, along with the medical professionals treating me. I'm specifically not looking for advice on my condition itself, if that's okay please.Not sure if it will work for you but green tea does wonders for my bladder. I dont know the exact mechanism but it is somehow bladder friendly/curative. You loose nothing for trying. Brew 2 or 3 green teas and drink peacefully on your crises days and tell us if it worked. Maybe you could help other people this way
Eeeesh, a cracked rib hurts! What happened Sistim, did you take a tumble? Keep yourself wellI'm pretty sure that I have a cracked rib and I am not gonna let that stop me from tripping.
Ah man, I'm sorry you had to navigate the hassle of catheters, I'm so glad the flare ended though. Bad flares can be absolutely hellish. Do you mind if I ask what exercises your physio gave you, please...? I had two sessions with one (she did an assessment and apparently I have a tight pelvic floor which might be contributing a lot?), and it felt really promising but then she quit and I haven't found a new one yet. I'm doing some stretches and internal work she showed me still. I'm still trying to find my triggers - caffeine, alcohol, and PMS are the only consistent things I've found so far. So frustrating when I have to manage a flare and I have no idea what caused it, ha. Interesting to hear about (lack of) sleep as a trigger for you, definitely something I can keep an eye on.I have interstitial cystitis. It stems from a hypertonic pelvic floor, which, in turn, is probably caused or at least aggravated by my IBS-C (which I have reason to believe may actually be SIBO, but that’s going off on a tangent here.) The thing that brought me out of a HORRIFIC flare that I was experiencing around June of last year was weekly bladder catheters of lidocaine, heparin and saline, hold for half an hour then pee it out. It was such a hassle but it got the job done. Urologist said they saw scarring on the bladder walls; too many successive UTIs over the years, plus overuse of antibiotics, were probably a contributing factor.
ANYWAY. I have used shrooms as pain relief/antidepressants many times, no issues. I have not used LSD since the onset of my IC symptoms, but I do plan to try it. I was taking Amitriptyline before (10mg only, I still have a bunch of it) but I stopped it in order to get pregnant. Oh and I saw a pelvic floor PT so that I could learn exercises to help stretch out my pelvic floor. And if I’m regular (not constipated) and not as stressed my symptoms are less. But the triggers for my symptoms are the same as what triggers my fibromyalgia, migraines etc: alcohol, stress, too much caffeine, too less sleep, etc etc you know the drill. It’s the same for any chronic pain/chronic illness patient, really, and usually most of us have more than one of these things cuz they overlap.
TL;DR: Shrooms helped me. Jury’s out on LSD.