It's been 10 years of pain at this point. It's hard to describe but a constant, hot, burning, cramping type feel. But nothing like any heartburn I've had. I would rather have sharp intense pain as I know what and why and I can handle it better. This is almost like a bad headache, obviously not exactly, that is dull and constant. A bad headache is about the worst thing to me.
I've had many scans and tried many meds. Muscle relaxers, ulcer meds, acid blockers, stomach coaters (Rx not pepto), and only thing that really touched it was the pain meds.
I never had a scope cause the Dr wanted to completely anesthetized me which is not normally required. Because of my health issues my other Drs advised against it. I should have found a different Dr but I didn't because my treating Dr said they were generally worthless and he didn't think they would find anything based on symptoms. But I'm going to find someone to do it as well as a vascular study with contrast.
I'm still determined to stop opiates even if I have to take 1 dilaudid every couple days to get thru worst of it and eventually get off. But I have an appt with my dad's Dr who he talks to about me and I think he won't stop until they figure something out. He's already super impressed that I stopped on my own from those amounts, I haven't told my main Dr yet because, well he sucks and is new after good one quit, and it was said there was a good chance they wouldn't give me pain meds again after telling them I want to quit and them helping. Dr said it takes an open minded doc to do that which mine is not. He has told me he doesn't want to see me and I should go 1.5 hours away, he won't look me in the eyes, and sees me for 2-3 min, scribbles a couple things and runs out. Little bitch. I have a very rare disease which he admits he knows nothing about and yet won't let me move to a different Dr in the practice that I know is seeing the one other patient in this part of the state (only about 200 people have it in US). I need to find a different Dr, but he keeps giving meds, and they give me literally the most expensive med in the US every 2 weeks. Over 100k/month and I know they get kickbacks for using it. So he wants to give me the meds but wants me to see another Dr for my care.
Anyways, I'm rambling. Just really tired of the side effects of that high dose for this long. Want to get off them bad and try to reach some type of normal even if it takes a year. Just can't deal with pain all the time and WD on top are really over the top.
Thanks for all the replies so far.